Daley Ponderings

Some pretty good appointments yesterday, and the snow (9 inches?!) wasn't too bad at all driving up to Dartmouth (one car sped by our line of traffic and a couple minutes later was spun off the road in the median, but she was already out of the car and on the phone, so presumably was fine, but... (More)

Jon was reading through Grace's test results and saw that the most recent bone marrow report mentioned the JAK3 mutation. He contacted her doctors because we thought that one was gone following the transplant. Dartmouth doctors can't see her Boston results to compare  so they contacted... (More)

We had our appointment with the NF1/oncology doctor yesterday. It turns out the neurofibroma is even bigger than we thought. In addition to what we already knew, which is that it goes from her external ear where we can see into her middle ear, it also extends down under her ear into her parotid... (More)

I had to go calculate the day since we no longer count the days like that any more - it has been great to have less medical stuff going on these days, and we get more comments about her being "so cute" in the grocery stores and the soccer games, etc. Her hair is growing in, and I don't think... (More)

We've probably said it before, and anyone who has been in a hospital for any length of time knows that any time someone says "soon" that means 2-10 hours, and "tomorrow" means 1-3 days, etc.  So, even though I posted here that it could be Friday, I've been telling myself Monday, though as... (More)

We've had some full days since our last post, so I'll try to catch you all up. On Friday night, Jon and the girls went to Camp Maranatha for the annual father-daughter retreat and the boys went to Boston to stay in the apartment. We went to Target to get some maternity shirts for Heather... (More)

Joy has designed a tshirt for Grace's cancer journey. We are selling them as a fundraiser for David's House . They cost us $20 each,  but we're selling them for $10 minimum and any amount you give over $10  will be donated to  David's House , the free housing we... (More)

Since I'm on a roll of typing out the insulation we've used, I figured I might as well post about our heating systems too. We have five different heating sources for our home, and someday we'll get a sixth... 1a. Oil burner base board radiators. I grew up with base board radiators and I... (More)

Someone just asked for advice on Facebook, and I figured I should save it here so I don't need to type it again when someone asks later.   We've had just about every kind of insulation in our house. So, more than you asked for, but hopefully useful. Also, if you don't know about it,... (More)

My due date was February 21. Jonathan, Noah, and Faith had all been exactly five days late. Joy was early, but we weren't sure of her date and the more we thought about it the more we figured she probably had been late as well. So we had Linda and Porter schedule their flight to arrive... (More)

The first blog post in a long time, I realize.  And I won't make any promises about more frequent updates, etc. I have found that I am writing on facebook more often, and reviewing products online (got a Kindle for Christmas, and so have been reading and reviewing on Amazon) and... (More)

Hrm.  This guy's logic seems alright to me.  A friend recently said it is the time to go buy a really, really expensive house, since once inflation goes way up, the house loan will be the same as a loaf of bread at the new rates...  :) (More)

Joy has two hair swirls at the back of her head.  One goes clockwise and one counter-clockwise.  Each of my other children only have one. 5/3 - Joy's two month appointment.  12 lb, 3 oz.  She is developing a birthmark in the upper right of her forehead (can't remember the... (More)

Jonathan's new adventure in earning money is a lemonade stand.  He thought maybe he could call it "Lemon Daley" as part of the family theme. At first, he had all sorts of grandiose ideas, including a frequent buyer's club, a toy day (when you get a toy with your purchase), and a fancy... (More)

3/11 - Faith can count to six. 3/12 - Faith counted to ten.  She isn't consistent with this.  She'll get stuck after six, but if someone says seven, she can do the rest on her own.  I don't think she has quantity recognition past five, though.  And she sometimes likes to... (More)