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The only known curative therapy for JMML is a bone marrow transplant, so we will be going down to the Boston Children's Hospital/Dana-Farber Cancer Institute . Their team is one of the leading cancer centers for treating JMML. We had our first visit on December 12, and are still processing... (More)
Posted by joyful on January 8, 2024, 2:38 pm
Category: Grace
6/17 - Nathaniel gets three molars at once.  upper left, lower left, lower right.  The upper right made its appearance 6/22. 6/21 - Haircut day for some.  (It's pretty hard to get everyone in one day.)  I cut Noah's hair, and some of Jeremiah's (he got impatient and I... (More)
Posted by joyful on June 25, 2016, 7:06 am
Category: Noah, Faith, Joy, Jeremiah, Nathaniel
4/26 - Jeremiah, after his first bowl of non-sugar cereal, asked for some sugar cereal.Only two pieces fell out of the box when I shook it, and he said, "Not two.  I said'some', like this..." holding up several fingers. 4/29 - Jeremiah can tie knots.  He tied the laces of my... (More)
Posted by joyful on June 17, 2016, 2:41 pm
Category: Noah, Joy, Jeremiah
On Saturday, March 26th, Jonathan, Faith, Joy and I participated in our first karate tournament. The whole family rose bright and early so we could drive the two hours and 15 minutes to Standish, Maine.  This tournament is relatively small, with only about five dojos participating.... (More)
Posted by joyful on March 31, 2016, 1:14 pm
Category: General, Jonathan, Faith, Joy
11/2 - Jeremiah, "Aunt Prudence gave us this one."  perfect grammar 11/3 - Jonathan, "Mom, did you know that if you take the 'c' out of 'record' and add 'er' at the end, it becomes 'reorder'?" 11/3 - Jeremiah, walking backwards with finger in front of his face, "Me try to pick [scab],... (More)
Posted by joyful on February 29, 2016, 8:41 am
Category: Jonathan, Noah, Faith, Joy, Jeremiah, Nathaniel
Once again, we were blessed to have Grandma and Dad-o with us for a birth. Jeremiah was still too clingy on Mommy for us to be comfortable having him at the birth.  He did well completely away from me, but had trouble when nearby and I was unavailable.  That is exactly the situation a... (More)
Posted by joyful on January 6, 2016, 1:36 pm
Category: Nathaniel
Got a bunch of spam comments and then when I was looking at posts, the boys pointed out that my last post was a month ago and I said "trip to DC goes in a separate post"...  So here we go. When we went into downtown to see the sights, we split up into smaller groups.  Jonathan,... (More)
Posted by joyful on April 23, 2014, 7:03 am
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah
12/4 - F putting on chapstick.  Joy recalls, "Last time my lips sting.  Now my lips better." 12/6 - JDD, in a growly voice, with a straw stuck in his teeth and the other end in a glass of water, "I am the savage, saber-toothed mosquito!" 12/6 - JPD upper right primary incisor 12/7 -... (More)
Posted by joyful on January 18, 2014, 8:52 am
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah
2013 Daley Christmas Letter (More)
Posted by joyful on January 1, 2014, 5:34 pm
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah
Faith had a blast at Star Island with Grammy and Papa. 7/25 - JDD, explaining why he likes to use a certain spoon for his breakfast cereal, "That spoon is special to me, because Grammy gave it to me for Christmas last year." 7/28 or 29 - Joy had a cold and I gave her 1 or 2 nebulizer... (More)
Posted by joyful on September 14, 2013, 11:30 am
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah
So last week I was worn out with the extra work that unexpected messes bring.  Today I'm tired but happy about it. Yesterday, Jon left very early to go on the church men's retreat.  Our morning at home started out pretty badly (bickering/fighting) and the boys had to go run around... (More)
Posted by joyful on June 8, 2013, 10:59 am
Category: General, Jonathan, Noah
My due date was February 21. Jonathan, Noah, and Faith had all been exactly five days late. Joy was early, but we weren't sure of her date and the more we thought about it the more we figured she probably had been late as well. So we had Linda and Porter schedule their flight to arrive... (More)
Posted by joyful on February 24, 2013, 5:55 pm
Category: Jeremiah
We are still working on renovating our new house, and thus we are still living with Jon's generous parents.  And since we are living here, we are schooling here.  But a comment from his mom gave me some insight into some non-homeschoolers' comments about homeschooling. We usually... (More)
Posted by joyful on September 29, 2012, 9:15 am
Category: General
4/11 - Jonathan likes to be creative with lunches.  He made dill pickle and mustard sandwiches that day. He liked it. As I was keeping track of rainbows I was struck by how many days were sunny.  April 2, 4, 5, 6, 7, 8, 9, 12, 13, 14, 15, 16, 18, 19, 20, 25 4/14 - Faith's first... (More)
Posted by joyful on May 20, 2012, 11:13 am
Category: General, Jonathan, Noah, Faith, Joy
Well, in the three weeks since I last posted, Joy has made major progress in mobility and the rest of the household is still working to adjust! 9/11 - Joy started crawling longer distances with a cross-pattern belly crawl. 9/13 - Every time we go into PIttsburgh, we cross the Allegheny... (More)
Posted by joyful on October 2, 2011, 11:58 am
Category: Jonathan, Noah, Faith, Joy
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