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Broken fibula
Sometime recently, Grace fell off a wooden block that she was using as a stool. I thought she had twisted her ankle. She would complain...
joyful, 30 October 2024 |
Investigating GI issues
Today, Boston called to say they'd like to observe Grace over the weekend and to prepare for admission on Friday. They will likely do a...
Happy, Happy, Happy!
Grace sings this little Happy song at least once a day. She sang it in the hallway as we were leaving the apartment to go home. I have...
Bone marrow aspirate today
This includes anesthesia and intubation and all that goes along with that. Please pray for her surgery and for the results. Thank you....
Engraftment, Drainage, and God Answers
The last couple of days have been tough, but today is looking up. At 2:00 this morning, Jon called me to say that her breathing was...
Liver problems and more pain
Noah did a good job driving in terrible Boston traffic, but it meant we got home late and I didn't get to talk to Jon for very long last...
Quick Update Day +15
Please pray for Grace's intestines to heal. The doctor is concerned about her continued diarrhea, and so stopped all formula feeds for a...
Tough days
Grace has been in pain and sleeping a lot. These are the hardest days when her counts are low before Faith's cells take hold. I've...
NG tube no fun
I walked home late Monday night, because there was supposed to be this big snowstorm. Jeremiah was already asleep, sprawled all over the...
Better but hard
Day +4 Grace has not thrown up at all today! She even had an episode where she ate too much macaroni at once, and was able to spit it...
Day +1
Faith steadily improved throughout the day as she slept through most of it and has now transferred to our Boston apartment. She got a...
Day 0 - Waiting
Faith's surgery went well. Her vitals stayed stable the whole time and they are all happy with how it went. She said coming out of...
Nausea
Grace is not feeling so great today. I approved for them to give her another anti-nausea med in the hope that she will feel like eating....
Days -8 and -7
T-minus seven days and counting. Transplant Day is Day 0 and they count all other days from that. Yesterday, I left off while Grace...
Admission Day and Chemo Begins
Based on the number of supportive messages we got yesterday, I know you are all eagerly awaiting an update. We arrived at the Dana...
A Snow Day From God
Today is our last day all together as a family for a while. God blessed it by sending a beautiful six inches of snow that cancelled our...
Fertility preservation
Monday, Grace had pre-transplant bone marrow aspiration and bone biopsy. That's kind of boring. The interesting surgery came right after...
Appointments today
Please pray for Grace's appointments today. Extensive dental work at 11AM under sedation (fillings and crowns), and sedation means...
Sunday blessings
We went to the Methodist Church today. It was so refreshing. It was communion Sunday, which was such a blessing. It's been a long time...
Backlog
Jon has implemented a system for me where I can send an email to post on the blog. I will be back-dating posts so they flow with the...
Pocket Notes
I am posting my backlog of pocket notes. Sometimes details are sparse. 4/1 - JPD, "'I'm goin' back to my work, after watchin'...
Pocket Notes
I am posting my backlog of pocket notes. Sometimes details are sparse. 2/1 - Jonathan, "Even Einstein didn't have a triple-digit...
Pocket Notes
I am posting my backlog of pocket notes. Sometimes details are sparse. 1/4 - The whole family plays Cousin Memory. Nathaniel...
Pocket Notes
I am posting my backlog of pocket notes. Sometimes details are sparse. 11/10 - Nathaniel was a messenger to me from Joy: "mum"...
Pocket Notes
I am posting my backlog of pocket notes. Sometimes details are sparse. 9/3 - Referring to two years ago, Jeremiah said, "The other...