Faith steadily improved throughout the day as she slept through most of it and has now transferred to our Boston apartment. She got a present (mailed to Grace at the hospital) so that was fun.

Grace's diaper rash did not get worse overnight, and without oral meds, she ate well and did not throw up. She was in a good mood most of the day. She was also extra pink with Faith's cells flowing through her.

She has started getting some sores on her tongue and the inside of her lips. She also has diarrhea.

I was thankful for her two hour nap because I'm very tired. It was good to get a nap. Jon came in and out, being with me and Grace, or Faith, or doing laundry. I visited Faith's room for a short time before dinner.

I zoomed with the home kids and got one online game in.

Now I'm at the apartment with Faith and Jon's at the hospital with Grace.

Goodnight, faithful friends.
Posted by Heather Daley on February 9, 2024, 9:41 pm | Read 342 times
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Eric, Austin and I are praying for you all. Eric's Mom and her sister did the same thing a week ahead of Grace and Faith. Norma is starting in on the mouth sores. Are they doing that light therapy thing for Grace with the weird space glasses? Norma has that every day I think.

Love to you all. Jen

Posted by Jen on February 9, 2024, 9:50 pm

Goodnight. May you all rest well under His watchful love.

Posted by Chris Spaulding on February 9, 2024, 11:08 pm

Thank you again for these updates. We will continue to pray for all of you. God Bless

Posted by Joyce Bosse on February 10, 2024, 7:38 pm

We have not heard of any light therapy. Children's doesn't really have a solution for the mouth sores, I think. They are doing a trial with Xylitol which we declined, because it is double blind, so possibly we wouldn't be using xylitol at all, and it also isn't that much xylitol, so if we are outside the trial we can do more xylitol on our own. It is hard to tell how much it is working, since we don't know if it would be worse if we weren't doing it, but so far, they aren't too bad.

Posted by jondaley on February 11, 2024, 5:10 pm

Good thinking on the xylitol therapy. My first reaction was to jump on the chance—but of course you are right, it's not as if xylitol is something you can't do yourself, and this way you know she is getting it.

Posted by Linda Wightman on February 14, 2024, 7:33 am
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