Today, Boston called to say they'd like to observe Grace over the weekend and to prepare for admission on Friday. They will likely do a colonoscopy and maybe even an endoscopy. (And Dartmouth suggested they get some bone marrow while she's sedated.)

She threw up her NG tube this morning and so Jon took her to Dartmouth. They were able to do her regular appointment stuff so we don't have to go in tomorrow. It was a more traumatic NG tube placement than the other two times, and their tape is not as good.

We have been giving her zofran the last few days. Her appetite has been practically nil. There's definitely something going on. It's not the typical GVHD symptoms, but they haven't ruled it out yet. There might be an NF1 related cause; I've done minimal research on that and it's a possibility.

We depend on God to hold us up, so please intercede on our behalf.
Posted by Heather Daley on June 25, 2024, 6:20 pm | Read 89 times
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Hopefully they can get it figured out and it's nothing serious. Keeping you in our thoughts and prayers. Hugs to all.

Posted by Dstb on June 25, 2024, 6:26 pm

Praying every day. Sending you love.

Posted by Jen Newhouse on June 25, 2024, 6:29 pm


Posted by Kathy Lewis on June 25, 2024, 6:41 pm

Gideon and I prayed for Grace (and Faith) before bed last night, and we will add these details to our petitions on behalf of the whole Daley clan.

Posted by Michelle Rohrbacher on June 25, 2024, 7:01 pm

Thank you for keeping us informed. We continue to keep Grace in our prayers, and indeed, all of you, because these ongoing complications affect the whole family.

Posted by Eric Feustel on June 25, 2024, 7:50 pm

We are praying.d
Thank you for the updates.
I just sent an request to our church's prayer chain for Grace, Faith and your whole family.

I was listening to a song while preparing dinner tonight and these verses stood out to me then and now:
"When I am anxious, when I'm afraid
I find the strength when I call on His Name
I'm safe in His arms, safe in His heart
And nothing can take me away
He's the King of power,
King of kings
He is the Lord over everything
To Him be the glory, the honor and praise
Forever and ever, amen always...
Hallelujah, He reigns
Hallelujah, He saves..."

Father in heaven, we know these words are true about you. We trust you to heal Grace and Faith and ask you carry away any and all fear and doubt.
Please continue to bless the whole Daley family with peace and help in their continued time of need as they and we seek you.
Be glorified.
In Jesus' name, Amen

Posted by Faith on June 25, 2024, 9:11 pm

Prayers for Grace and Faith and all the Daleys.

Posted by Nancy Shee on June 25, 2024, 10:39 pm


Posted by Heidi on June 26, 2024, 7:10 am

Of course we are begging our Lord on your behave

Posted by Denise on June 26, 2024, 4:36 pm
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