joyful
Great results
Wednesday's many tests all went well. The MRI showed shrinkage of the tumor, especially around the ear canal (less so in the...
joyful, 13 July 2025 |
Healing and Testing
Jon just put this comment on a recent post, but I don't think most people get notified of comments, so I'm posting it here: She's...
Day +500
Today is Day +500 and we have much to rejoice over! We are so thankful for Grace's good marrow results, so thankful to reach this...
Prayer and fasting Wednesday
The day of prayer and fasting for Grace has been scheduled for this Wednesday, June 11, 2025. Please observe this in the way that...
Cast Your Cares On Him
Jon was reading through Grace's test results and saw that the most recent bone marrow report mentioned the JAK3 mutation. He contacted...
Hearing aid
On Thursday, Grace got her hearing aid! They did a whole hearing test so they could program the device to her exact needs. The inner ear...
Day +456
Here's a quick update. Grace has some virus that she's fighting off and she gave it to me, too. In medical news, she had a checkup...
Plexiform
We had our appointment with the NF1/oncology doctor yesterday. It turns out the neurofibroma is even bigger than we thought. In addition...
One year home; biopsy results
One year ago today, our older kids got to see a total solar eclipse, and Grace came home! These annual milestones are flying by this...
Day +413, ear surgery
As far as we know, the surgery went well. He took two biopsies, one in front of the eardrum and one behind. There was not much fluid, so...