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Day +413, ear surgery

Posted in Daley Ponderings

As far as we know, the surgery went well. He took two biopsies, one in front of the eardrum and one behind. There was not much fluid, so...

Surgery Tomorrow (Thursday, March 27)

Posted in Daley Ponderings

As Jon mentioned, Grace is having ear surgery tomorrow to explore what's going on, get a biopsy, and maybe get a tube in.  The...

St. Patrick's Raining Taco Day

Posted in Daley Ponderings

Today is the day, one year ago, that Grace was allowed to exit the hallway doors of 6 West and live in a place other than a hospital...

Upcoming appointments

Posted in Daley Ponderings

Grace has her ear CT scan, and audiology and ENT appointments this Friday, March 14. April 17 is the scheduled date for her next bone...

More Time For Praying

Posted in Daley Ponderings

Grace had several appointments at Dartmouth today: audiology, ENT, oncology/nf1, lab draw This is my memory's summary of Jon's report...

One Year Transplant Anniversary!

Posted in Daley Ponderings

Today is Day +365. One year ago, this is where we were: Today, Faith is recovered enough to participate in On Belay's Teen...

Possible neurofibroma

Posted in Daley Ponderings

From all outward appearances, Grace has been doing very well. She's eating well and gaining weight. All her blood numbers look good. She...

NG tube out!

Posted in Daley Ponderings

Grace has been enjoying walking in the snow and climbing on the plowed parts.      On Wednesday, December 11,...

New Green Ember book giveaway

Posted in Daley Ponderings

Because he likes to compete with Brandon Sanderson, SD Smith is launching a new Green Ember book today.  Our family loves the...

Thanksgiving for Grace

Posted in Daley Ponderings

Sorry we left you hanging about Grace's recent appointments. Here are some things to be thankful for about Grace. She did really well...

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