joyful

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Hope's words

Posted in Daley Ponderings

hi mom/mommy/"mahmeemahmeemum" dad ball "bahw" dog "dah-dah" (she used that word for a cat yesterday also) bellybutton...

Two Boston Visits

Posted in Daley Ponderings

On Sunday, we went to the Franklin Park Zoo. This event was hosted by the Jimmy Fund clinic for its patients. It was sobering how many...

Day +571

Posted in Daley Ponderings

Well, I didn't manage to post this yesterday when the day was a nice round, even number, so I get to post it today when it's a prime...

Great results

Posted in Daley Ponderings

Wednesday's many tests all went well. The MRI showed shrinkage of the tumor, especially around the ear canal (less so in the...

Healing and Testing

Posted in Daley Ponderings

Jon just put this comment on a recent post, but I don't think most people get notified of comments, so I'm posting it here: She's...

Day +500

Posted in Daley Ponderings

Today is Day +500 and we have much to rejoice over! We are so thankful for Grace's good marrow results, so thankful to reach this...

Prayer and fasting Wednesday

Posted in Daley Ponderings

The day of prayer and fasting for Grace has been scheduled for this Wednesday, June 11, 2025. Please observe this in the way that...

Cast Your Cares On Him

Posted in Daley Ponderings

Jon was reading through Grace's test results and saw that the most recent bone marrow report mentioned the JAK3 mutation. He contacted...

Hearing aid

Posted in Daley Ponderings

On Thursday, Grace got her hearing aid! They did a whole hearing test so they could program the device to her exact needs. The inner ear...

Day +456

Posted in Daley Ponderings

Here's a quick update. Grace has some virus that she's fighting off and she gave it to me, too. In medical news, she had a checkup...

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