Grace is getting an MRI, and ECG, and bloodwork (including thyroid) tomorrow morning at Dartmouth. I'm not sure how much the thyroid medicine is working, so we'll see what the numbers say. Her skin is very dry and she has rashes in places, and also the dryness is itchy so she scratches it, sometimes to bleeding.
Today is day +641! What a big number, and we are thankful. We're coming up on two years since diagnosis and oh, how far she's come!
Grace turned four last month!

Making her own birthday brownies:

She can make fun shapes in her fruit: smiley oranges and bunny apples:


She went ice skating for the first time:

Posted by
Heather Daley on
November 10, 2025, 8:56 pm
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We continue to pray. So wonderful to be 4!!!
An amazing little person in a family of amazing people. Prayers continue for Grace's journey.
Definitely praying for Grace tomorrow morning. Safe travel and good results!
Happy belated Birthday Grace!
Thinking of and missing you all. Praise God for 641+ days and
praying now for His continued healing, blessings and peace to flow to Grace and your whole beautiful family.
Psalm 92:1-2,4
It is good to give thanks to the Lord, and to sing praises to Your name, O Most High;
To declare Your loving kindness in the morning, And your faithfulness every night...
For you,Lord, have made me glad through Your work;
I will triumph in the works of Your hands.
Thank you for keeping all of us updated
Thank you for always showing your faith
Thank you Jesus for this family