Well, I didn't manage to post this yesterday when the day was a nice round, even number, so I get to post it today when it's a prime number!
This has been a full summer for us.
Noah was home.

Grace got to ride at Summerfest just like all the other healthy children! She had such a blast!

Grace was so excited to be able to go to the Maggie P. She has been looking forward to swimming at the Maggie P ever since last year when she couldn't swim because of her central line. She talked about it every month at least for the whole year, "When I go to the Maggie P, I'm going to go swimming!"

At playgrounds while Nathaniel was at Ninja Camp:


She loves hugging bananas and asks me to get a picture every time we buy some!

Smoothie mustache:

Being a Viking at History Alive:

Grace has been doing very well. One side effect we have now noticed from her koselugo is that her hair is thinning out. I'm very thankful that she does not have the more serious side effects, but I am also sad to see her beautiful wavy brown hair starting to come out again. (No, I do not know the future prospects for that and I keep forgetting to write to the NF1 doctor about it.)
Grace and Faith have appointments in Boston this month, and Grace has another hearing check in October.
Posted by
Heather Daley on
September 1, 2025, 6:15 am
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Thanks so much for the update!
That you for the updates!!