Daley Ponderings

The test is done and we are back home.  Nothing too eventful to report.  Our regular physican's assistant did the biopsy, so got to talk to him a little bit, and he is going to research one question that we aren't sure about regarding what 97% chimerism test means.

He did say false positives on a JAK3 test are possible, though very low probability.  He agreed that a clerical error would be ideal, but he didn't think that was too likely either.

I said that I've been assuming a positive JAK3 test is a pre-cursor to the chimerism test dropping to a "mixed chimerism", and he is always very careful with his words, and said that it isn't a harbinger or a pre-cursor, but it is a pre-disposition.

We will find out all of the results in a week or so.

The day of prayer and fasting for Grace has been scheduled for this Wednesday, June 11, 2025.

Please observe this in the way that seems best to you. Jon and Grace will be at the Hillsboro Methodist Church (16 Henniker Street, Hillsboro, NH 03244) from 11AM - 6PM.

Pray for complete healing, continued remission, 100% tumor shrinkage, peace, and whatever God puts on your heart. And Thursday is Grace's repeat bone marrow aspirate.

The scriptures that we are clinging to and praying through:

"And he said unto me, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me."  - 2 Corinthians 12:9

"It is of the LORD's mercies that we are not consumed, because his compassions fail not. They are new every morning: great is thy faithfulness."  - Lamentations 3:22-23

Jon was reading through Grace's test results and saw that the most recent bone marrow report mentioned the JAK3 mutation. He contacted her doctors because we thought that one was gone following the transplant.

Dartmouth doctors can't see her Boston results to compare  so they contacted the head transplant doctor there. She said that seemed odd given the good chimerism results, but she wants another aspirate as soon as possible to make sure. So that is scheduled for June 12. We aren't clear as to why no one noticed that before. We think the Dartmouth doctors thought it was expected, and I guess the Boston doctors didn't see the results?  It does make us wonder if we need to be paying more attention - we try to read all of the medical records, but don't always read through everything, and sometimes it gets pretty technical.

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