jondaley
Sailing Trip!
Jeremiah and I will be with Heather's first cousin once removed and sailing from Florida to Connecticut starting tomorrow. We've...
jondaley, 16 July 2025 |
June 2025 Biopsy Results!
Short version of the post - all good results! You can read the longer version below. We are very happy and it has been a...
Bone Marrow Biopsy
The test is done and we are back home. Nothing too eventful to report. Our regular physican's assistant did the biopsy, so...
Holy Week
Our week has been somewhat full, with a few extra church services, including Maundy Thursday with handbells, which I didn't find out...
Plexiform Results
An ENT, a radiologist and an oncologist walk into a bar... Oh, maybe not, but they at least had a discussion about Grace while...
A Prayer When You Are Faced with an Incurable Diagnosis
I get daily emails from GodTube.com, and they are often worth reading. Today's devotional was good. While I don't ever...
MRI Scan
As previously mentioned, Heather noticed a spot in Grace's ear last summer, and when the NF1 doctors heard about it, they were concerned...
Where is Elbereth?
Last weekend, Heather took all of the girls on a retreat and had a lot of fun together. Those of us at home had a work day at...
Day +235
I had to go calculate the day since we no longer count the days like that any more - it has been great to have less medical stuff going...
Day +146: Discharge Today!
Grace is all set to leave in a few hours - just waiting on paperwork. Her potassium is a little high, but they had taken off her...