jondaley
Plexiform Results
An ENT, a radiologist and an oncologist walk into a bar... Oh, maybe not, but they at least had a discussion about Grace while...
jondaley, 21 March 2025 |
A Prayer When You Are Faced with an Incurable Diagnosis
I get daily emails from GodTube.com, and they are often worth reading. Today's devotional was good. While I don't ever...
MRI Scan
As previously mentioned, Heather noticed a spot in Grace's ear last summer, and when the NF1 doctors heard about it, they were concerned...
Where is Elbereth?
Last weekend, Heather took all of the girls on a retreat and had a lot of fun together. Those of us at home had a work day at...
Day +235
I had to go calculate the day since we no longer count the days like that any more - it has been great to have less medical stuff going...
Day +146: Discharge Today!
Grace is all set to leave in a few hours - just waiting on paperwork. Her potassium is a little high, but they had taken off her...
Day +144: GVHD
Heather is better at writing the updates than I am, though I've been intending to write a few since we've been back in the hospital....
Bone Marrow Donation Isn't All Its Cracked Up To Be
When Faith signed up for the donation, she was told to expect one or maybe two days of significant pain, and then a week of pain that...
Day +75, No News is Good News
As they say, no news is good news. Not much exciting has been going on lately. Grace is eating a fairly regular diet at...
Homeward Bound!
We are headed home on Monday! Grace will still have at least one clinic visit a week and depending on the labs that week,...