We went to the Methodist Church today. It was so refreshing. It was communion Sunday, which was such a blessing. It's been a long time...
For the most part, these last two days went pretty well. Grace was a trooper as we navigated the multiple confusing buildings and...
Had sushi after a day of appointments at the Dana Farber Cancer Institute. We're staying overnight tonight....
We are heading to Boston tomorrow and Thursday for a myriad of appointments. Faith will also have her donor preparation appointments....
Due to getting COVID, Grace's transplant date has been re-scheduled and we are currently scheduled to start the prepatory chemo (much...
The only known curative therapy for JMML is a bone marrow transplant, so we will be going down to the Boston Children's...
The pathology report indicated no parasites, and no bacterial infection, but confirmed the swollen lymph nodes. The doctor said,...
(this was written January 2024, referring to Grace's first two years of life) When Grace was about six weeks old, right at the...
We were intentionally not posting online to allow for some in-person notifications, but we are happy to now announce that we are...
We haven't been blogging much, just living life and having fun together. But, it is sort of sad that Grace didn't even have...
I switched to Capital One after being with Citibank for years (decades, actually). Citibank started a poor security practice of...
Since I'm on a roll of typing out the insulation we've used, I figured I might as well post about our heating systems too. We have...
Someone just asked for advice on Facebook, and I figured I should save it here so I don't need to type it again when someone asks later....
Jon has implemented a system for me where I can send an email to post on the blog. I will be back-dating posts so they flow with the...
In honor of the end of World War I one hundred years ago today, I post a picture of Joy hugging the tree that was planted in memory of...
There are, of course, many examples of why Jon is a great Dad, but this is a particular one I'd like to record. One evening, Jon and...
I am posting my backlog of pocket notes. Sometimes details are sparse. 4/1 - JPD, "'I'm goin' back to my work, after watchin'...
I am posting my backlog of pocket notes. Sometimes details are sparse. 2/1 - Jonathan, "Even Einstein didn't have a triple-digit...
I am posting my backlog of pocket notes. Sometimes details are sparse. 1/4 - The whole family plays Cousin Memory. Nathaniel...
I am posting my backlog of pocket notes. Sometimes details are sparse. 11/10 - Nathaniel was a messenger to me from Joy: "mum"...
I am posting my backlog of pocket notes. Sometimes details are sparse. 9/3 - Referring to two years ago, Jeremiah said, "The other...
I am posting my backlog of pocket notes. Sometimes details are sparse. 8/9 - JPD, "The last name of my yellow shirt is 'Egg'."...
I am posting my backlog of pocket notes. Sometimes details are sparse. 6/29/16 - Noah's party, kids building brick fort, all the...
Or: How This Mom Started Playing Minecraft They say that a good way to show love is to take an interset in what the other person is...
I am posting my backlog of pocket notes. Sometimes details are sparse. more (sign too) = "moh", also means "I want that" Mom ow...