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Day +75, No News is Good News
As they say, no news is good news. Not much exciting has been going on lately. Grace is eating a fairly regular diet at...
jondaley, 23 April 2024 |
Happy, Happy, Happy!
Grace sings this little Happy song at least once a day. She sang it in the hallway as we were leaving the apartment to go home. I have...
Homeward Bound!
We are headed home on Monday! Grace will still have at least one clinic visit a week and depending on the labs that week,...
Day +55
We went back to the clinic in the late morning after Grace threw up her NG tube. She did manage to take her meds by mouth that...
Apartment Life
We are settling into our second week of being full-time in the apartment. Our schedule consists of: Adminstering meds 3 times a...
Bone marrow aspirate today
This includes anesthesia and intubation and all that goes along with that. Please pray for her surgery and for the results. Thank you....
Pictures
She got her own badge. We got the news that we can leave! Exploring the apartment. Playing with...
Home away from home
Grace did well her first night. I had a harder time because it was like having a young baby - changing diapers in the night; she did go...
Discharge Parade
The kids who have been admitted for any length of time look longingly at the airlock doors that leave the hallway they are not allowed...
Discharged!
We left the hospital at 5pm today and are "home" at our new apartment and working out this phase. Lots of meds to organize and...
Hospital Time
We've probably said it before, and anyone who has been in a hospital for any length of time knows that any time someone says "soon" that...
Discharge?
The doctors started talking about discharge last Friday and that continued on Monday. They decided to turn off the continuous...
Family Weekend
We've had some full days since our last post, so I'll try to catch you all up. On Friday night, Jon and the girls went to Camp...
Day +30
Grace has been steadily improving. She is not throwing up as much, she's had a few messy diapers that look more normal than...
Day +27
Grace had a great day today, despite staying up until after midnight (I went to sleep, but I asked the nurse in the morning, and she...
Faith is 15 1/2!
Day +26
We have lots of good news to report. Grace has been improving the last couple of days. Her abdomen measured 53.5 cm, the...
Hospital Helper?
Our family will be in Boston next weekend (after the father-daughter retreat at Maranatha) and we are wondering if there is anyone who...
A step better
From Jon "[Yesterday's ultrasound] didn't report too much that we didn't already know. There was a little fluid in her abdomen on...
New Room
In addition to the drain being installed yesterday, yesterday was moving day. They have all patients move every month to allow for...
Engraftment, Drainage, and God Answers
The last couple of days have been tough, but today is looking up. At 2:00 this morning, Jon called me to say that her breathing was...
Liver problems and more pain
Noah did a good job driving in terrible Boston traffic, but it meant we got home late and I didn't get to talk to Jon for very long last...
Pain and Poop
The last several days have been back and forth. I’ve started several posts in my head, and then they end up changing. The weekend...
Waiting and Watching
Once again, it was good for me to visit home. This time, I brought Joy back with me. We left later than I meant to, for various reasons...
Quick Update Day +15
Please pray for Grace's intestines to heal. The doctor is concerned about her continued diarrhea, and so stopped all formula feeds for a...