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Thanksgiving for Grace
Sorry we left you hanging about Grace's recent appointments. Here are some things to be thankful for about Grace. She did really well...
joyful, 25 November 2024 |
Where is Elbereth?
Last weekend, Heather took all of the girls on a retreat and had a lot of fun together. Those of us at home had a work day at...
NF1 Appointment
The appointment with the NF1 doctor went well. One of her oncology doctors was also there, the one who works closely in the NF1 world....
Broken fibula
Sometime recently, Grace fell off a wooden block that she was using as a stool. I thought she had twisted her ankle. She would complain...
Central line is out!
Line removal surgery was successful. She did great for the IV. She came out of anesthesia quickly and they were home by 4:30....
Birthday surprise
Grace has had a fun birthday overall, with balloons and presents and blowing out the candles. But tonight, during her...
Better, but always an adventure
Grace woke up Friday morning wanting to eat and drink, and she has kept everything down. There is a cold running around our house, which...
Grace Will Be Three!
Next week is Grace's third birthday, for which we are exceptionally grateful. I know that there are a lot of people out there who...
Sickness
Please pray for Grace as she has some sort of sickness. Last night, she threw up a lot. She is resting now. She has...
Day +235
I had to go calculate the day since we no longer count the days like that any more - it has been great to have less medical stuff going...
HD Girls' Soccer Orange Out Game - September 11
Faith's soccer team is having a leukemia awareness game in honor of her and Grace and our family. September 11, 2024 4:00pm...
Update - Sorry!
So sorry I left you hanging. Grace and I went back to Dartmouth the next Friday. They did her bloodwork and the creatinine...
Day +196: Long Clinic Visit, Kidneys?
Jon and Grace just got back from a very long clinic visit at Darmouth. Jon did not have time to tell me much, since he had to...
Day +170 Update
We were so relieved and happy to have Jon and Grace with us for Family Camp. Daley summer life has been super full as...
Day +146: Discharge Today!
Grace is all set to leave in a few hours - just waiting on paperwork. Her potassium is a little high, but they had taken off her...
Day +144: GVHD
Heather is better at writing the updates than I am, though I've been intending to write a few since we've been back in the hospital....
Waiting for results
Screenshot of a video call on Thursday: Friday's procedures went well. They got plenty of marrow for their tests. The...
Hospital Update
Grace has been on a clear liquid diet until today where she is getting nothing into her stomach until anesthesia at 5:30. She will...
Fever and Admission
When Jon and Grace got back from Dartmouth, Jon asked me to take her temperature. He could feel that she was hot, but the...
Investigating GI issues
Today, Boston called to say they'd like to observe Grace over the weekend and to prepare for admission on Friday. They will likely do a...
Bone Marrow Donation Isn't All Its Cracked Up To Be
When Faith signed up for the donation, she was told to expect one or maybe two days of significant pain, and then a week of pain that...
Belly Hurts, Updated
Today is day +133. (Jon updated this post) Grace has been having belly pain and a lot of mucus in her stool, often with blood as...
Bone marrow aspirate Wednesday
Jon and Grace are heading to Boston on Wednesday for her post-day-100 bone marrow aspirate. Prayers appreciated!
Hope Serena Daley is born!
May 31, 6:50pm 9 pounds, 11 ounces 22" All is well, praise the Lord of Hosts! Romans 15:13 KJV...
Blue Shirt Picture #9
Today is the due date! On Saturday, I had Noah take my traditional Blue Shirt picture. I'm ready to meet this...