jondaley

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Day +75, No News is Good News

Posted in Daley Ponderings

As they say, no news is good news.  Not much exciting has been going on lately.  Grace is eating a fairly regular diet at...

Homeward Bound!

Posted in Daley Ponderings

We are headed home on Monday!   Grace will still have at least one clinic visit a week and depending on the labs that week,...

Apartment Life

Posted in Daley Ponderings

We are settling into our second week of being full-time in the apartment. Our schedule consists of: Adminstering meds 3 times a...

Discharge Parade

Posted in Daley Ponderings

The kids who have been admitted for any length of time look longingly at the airlock doors that leave the hallway they are not allowed...

Discharged!

Posted in Daley Ponderings

We left the hospital at 5pm today and are "home" at our new apartment and working out this phase.  Lots of meds to organize and...

Hospital Time

Posted in Daley Ponderings

We've probably said it before, and anyone who has been in a hospital for any length of time knows that any time someone says "soon" that...

Discharge?

Posted in Daley Ponderings

The doctors started talking about discharge last Friday and that continued on Monday.  They decided to turn off the continuous...

Family Weekend

Posted in Daley Ponderings

We've had some full days since our last post, so I'll try to catch you all up. On Friday night, Jon and the girls went to Camp...

Day +27

Posted in Daley Ponderings

Grace had a great day today, despite staying up until after midnight (I went to sleep, but I asked the nurse in the morning, and she...

Day +26

Posted in Daley Ponderings

We have lots of good news to report. Grace has been improving the last couple of days.  Her abdomen measured 53.5 cm, the...

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