We are headed home on Monday!


Grace will still have at least one clinic visit a week and depending on the labs that week, might have a second appointment, but we decided that for the sake of our entire family, we need to be home and it is worth driving back and forth as needed.

At some point, we'll transition to some appointments at Dartmouth hospital and some at Dana Farber.

We need to get the prescriptions transferred to Hillsboro and the CVS in Boston isn't making that easy.

We are thankful that Grace has been less nauseous and we've been able to reduce her formula intake down to 16 ounces per day and she is eating more on her own and has steadily been gaining weight.

We need to figure out what "isolation" means for Grace and how to keep her from getting sick, but also not living in a complete bubble.

Her next milestone is the 3 month mark, where if things continue, her transplant will be considered to be successful, though there is still the possibility for graft vs host disease until she is off the immunosuppressant drugs. 


Posted by Jon Daley on April 6, 2024, 4:17 am | Read 103 times
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Praise God! Will continue to pray for the transition. Thank you for these updates; they are precious.

Posted by Laurie D on April 6, 2024, 6:54 am

Looking forward to her coming home!!!

Posted by Heidi on April 6, 2024, 7:29 am

Great news! I'm sure it will do everyone good to be all together again.

Posted by Dstb on April 6, 2024, 7:40 am

Hallelujah! Oh how wonderful. Great news about progress in eating. And will be praying as you figure out new normal. Love you

Posted by Alissa on April 6, 2024, 7:41 am

Praise God for the progress she has made!! Praying that the pharmacy gets straightened out.

Posted by Michelle Rohrbacher on April 6, 2024, 9:02 am

That's excellent news. So glad you can all be together as a family again.

Posted by Kim on April 6, 2024, 9:03 am

That is such happy news! It will be wonderful to have your whole family together again!

Posted by Patricia Langdon on April 6, 2024, 10:45 am

We are happy for Grace, that is a very good news!!

Posted by Rujiraumporn family on April 6, 2024, 11:21 am

Rejoicing with you and praying on!

Posted by Pam on April 6, 2024, 12:09 pm


Posted by Kathy Lewis on April 6, 2024, 2:56 pm

Oh, Hallelujah indeed!

Posted by Chris S on April 6, 2024, 8:07 pm

Fantastic news...Congratulations on such great progress!!!

Posted by Laurie on April 9, 2024, 12:16 pm
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