Grace is all set to leave in a few hours - just waiting on paperwork.

Her potassium is a little high, but they had taken off her potassium-lowering drug, and she has been eating 4-5 bananas a day, so they expect she will be fine once she goes back on her regular meds and has more choices of regular food.

She has been eating English muffins (and the nurses are impressed that she can put the jelly on herself - I'm not sure where that skill falls on the normal development chart to know if that is impressive or not) and French toast as well, but her primary diet has been bananas.

Her stools have been the best they have in a long time, and she even had negative results for blood, which hasn't happened in our memory.

Posted by Jon Daley on July 3, 2024, 9:28 am | Read 153 times | Comments (5)
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Heather is better at writing the updates than I am, though I've been intending to write a few since we've been back in the hospital.

She has been doing quite well the last few days and much more cheery.  Nothing like a colonoscopy to cheer you up I guess.  I hadn't been paying attention (that they hadn't given her any prep drink stuff) before the colonoscopy, but they had decided to do just a sigmoidoscopy instead of a full one, so I was surprised by that when discussing the plans with the GI proceduralist just before getting it done.  He said he would go as far as safe, and went in 20-25 cm, which was bigger than he had gestured with his hands, but I assume is what he was planning on doing from the start, but was just being as nice as he could be to me.

The endoscopy (from the top) was clear, and I was surprised to learn that they started the procedure without intubating her at all, but she had some trouble breathing on her own and so stopped and intubated (using the correct size tube - he was listening - I told about 6 people that day who all said they would get the message to the right person; sometimes they previously have not listened to me, or paid attention to her chart, and used a larger tube than fits well for Grace).

We are still waiting on some viral reports that should come back tomorrow, but she has been officially diagnosed with GVHD*, despite all of the oncology providers thinking that wasn't going to be the case and all of the non-oncology providers assuming it would be the issue, so that is curious to me.  If you read the symptoms at the previous link, you'll see that she doesn't have most of the symptoms, and so I think they are used to seeing more symptoms so figured it was something else.

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Posted by Jon Daley on July 1, 2024, 10:21 pm | Read 653 times | Comments (3)
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