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Some Freedom, Some Nausea
The last post left you with Jon and Grace down in ultrasound. That procedure took two hours. They took hundreds of pictures - exploring all her internal organs. She does have vessel constriction in her liver, wgich is not unexpected with JMML. So since then, she has gotten another prophylactic... (More)
Posted by joyful on February 3, 2024, 5:44 pm
Category: Grace
Days -8 and -7
T-minus seven days and counting. Transplant Day is Day 0 and they count all other days from that. Yesterday, I left off while Grace was still sleeping. She woke up slightly grumpy, but soon was fully awake and her normal self. Chemo every six hours, blood draws every half hour (!) plus... (More)
Posted by joyful on February 1, 2024, 2:21 pm
Category: Grace
Dartmouth Emergency Room
The pathology report indicated no parasites, and no bacterial infection, but confirmed the swollen lymph nodes. The doctor said, “I do not like the look of her paleness, and that spleen is really big. We need to see inside; go downstairs and get to imaging right away.” Grace had an... (More)
Posted by joyful on January 8, 2024, 2:37 pm
Category: Grace
Grace: Two Years of Unexplained Medical Issues
(this was written January 2024, referring to Grace's first two years of life) When Grace was about six weeks old, right at the beginning of December 2021 , I noticed that she had “ café au lait spots .” I looked it up on the internet, and discovered that these... (More)
Posted by joyful on January 8, 2024, 2:33 pm
Category: Grace
Heating
Since I'm on a roll of typing out the insulation we've used, I figured I might as well post about our heating systems too. We have five different heating sources for our home, and someday we'll get a sixth... 1a. Oil burner base board radiators. I grew up with base board radiators and I... (More)
Posted by jondaley on October 30, 2020, 10:46 am
Category: General, Reviews
Nathaniel Is Born!
Once again, we were blessed to have Grandma and Dad-o with us for a birth. Jeremiah was still too clingy on Mommy for us to be comfortable having him at the birth.  He did well completely away from me, but had trouble when nearby and I was unavailable.  That is exactly the situation a... (More)
Posted by joyful on January 6, 2016, 1:36 pm
Category: Nathaniel
Daley Vacation Washington DC
Got a bunch of spam comments and then when I was looking at posts, the boys pointed out that my last post was a month ago and I said "trip to DC goes in a separate post"...  So here we go. When we went into downtown to see the sights, we split up into smaller groups.  Jonathan,... (More)
Posted by joyful on April 23, 2014, 7:03 am
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah
My Mother-In-Law's Insight Into Homeschooling
We are still working on renovating our new house, and thus we are still living with Jon's generous parents.  And since we are living here, we are schooling here.  But a comment from his mom gave me some insight into some non-homeschoolers' comments about homeschooling. We usually... (More)
Posted by joyful on September 29, 2012, 9:15 am
Category: General
Pocket Notes
Pictures from April till now are posted. (See link on the sidebar) 5/24 - I don't remember the context, but the quote from Jonathan is, "Well, the definition of 'Mom' is basically 'tired person'." 5/25 - Noah showed me his newfound skill of pumping a swing from standstill to as high as he... (More)
Posted by joyful on June 3, 2012, 3:25 pm
Category: Jonathan, Noah, Faith, Joy
Notes Catchup Part I
2/6 - Joy went down a whole flight of stairs successfully.  She slides down forwards on her bottom.  Faith was with her this time.  By now, she's an old pro at stairs. I bought some mini hair clips for Faith.  They are the normal clear, brown, black, swirly brown that hair... (More)
Posted by joyful on April 1, 2012, 10:35 am
Category: General, Jonathan, Noah, Faith, Joy
Pocket Notes
11/18 - Jonathan, when meaning to say cylindrical said, "cylindicular" 11/23 - Joy took her first step, accidentally. 11/26 - Joy climbed up a whole flight of stairs.  This was the first time she had done more than one small step.  She was so thrilled with her newfound skill... (More)
Posted by joyful on December 18, 2011, 2:16 pm
Category: Jonathan, Noah, Joy
Firefighting
I don't think it has been said here, other than in small mentions here and there, that I joined our volunteer fire company in Middlesex Township a couple of months ago.  I am not sure of the exact number of incidents that I've gone out on, but the number is probably around 8 or so, though... (More)
Posted by jondaley on June 9, 2011, 4:57 pm
Category: Reviews
Old Hard Drives from Amazon and Newegg
I bought 6 Seagate hard drives from Amazon and Newegg, and both companies sent me drives that already had half their warranty expired. Amazon, after waiting for the customer support guy to handle 5 simultaneous chat sessions, and so was quite slow at responding, did send out a mailing label... (More)
Posted by jondaley on March 18, 2011, 11:39 am
Category: Reviews
Notes, Haircut
1/20 - Jonathan, as usual, singing while he plays and works.  This time it was, "Come, Tom Bombadil, Tom Bombadil.  Come, Tom Bombadil..." 1/22 - When boys have a tea party:  Noah, Faith and I were playing with Faith's tea set.  Noah said he couldn't eat his soup because... (More)
Posted by joyful on February 3, 2011, 9:58 am
Category: General, Jonathan, Pregnancy, Noah, Faith
Minivan: Oldsmobile Silhouette
We bought a "new" minivan last year, and it had the lowest mileage, and highest cost of any car we've owned so far.  It is a 1997 Oldsmobile Silhouette, and it had 107,000 miles on it.  We did a lot of driving (I hit 135,000 today, after a year and a half).  Heather and I both... (More)
Posted by jondaley on December 22, 2010, 10:41 pm
Category: Reviews
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