Search Results: tests

The only known curative therapy for JMML is a bone marrow transplant, so we will be going down to the Boston Children's Hospital/Dana-Farber Cancer Institute . Their team is one of the leading cancer centers for treating JMML. We had our first visit on December 12, and are still processing... (More)
Posted by joyful on January 8, 2024, 2:38 pm
Category: Grace
The pathology report indicated no parasites, and no bacterial infection, but confirmed the swollen lymph nodes. The doctor said, “I do not like the look of her paleness, and that spleen is really big. We need to see inside; go downstairs and get to imaging right away.” Grace had an... (More)
Posted by joyful on January 8, 2024, 2:37 pm
Category: Grace
(this was written January 2024, referring to Grace's first two years of life) When Grace was about six weeks old, right at the beginning of December 2021 , I noticed that she had “ café au lait spots .” I looked it up on the internet, and discovered that these... (More)
Posted by joyful on January 8, 2024, 2:33 pm
Category: Grace
2/15 - JPD walked up to me and hugged my knees.  He now does this often. 2/19 - JDD quotes from The Incredibles, with an Indian flair: "This is your automated captain speaking. Would you like more samosas?" 2/24 - JDD "What's the difference between lo mein and chow mein, and why isn't... (More)
Posted by joyful on March 23, 2014, 5:44 am
Category: Jonathan, Noah, Faith, Joy, Jeremiah
I noticed recently that Armstrong upgraded our connection to the internet from home. We now get 10Mbps download and 1.5Mbps upload.  We still pay a little less than $40/month.  We would use a faster upload connection if we had it, but we rarely find servers that will let us download... (More)
Posted by jondaley on May 31, 2010, 7:30 pm
Category: Reviews
"The church exists by mission as a fire exists by burning." -- Emil Brunner Mission very easily becomes one activity among others in church life.  It sits on the agenda alongside a list of other items bying for attention.  Or it is left to the enthusiasts to get on... (More)
Posted by jondaley on April 4, 2010, 6:01 pm
Category: Reviews
There is a bizarre issue with AT&T and their latest phone - the tech support folks (even the second level) haven't ever seen one, and the scripts they have are made for the original Tilt, and AT&T somehow hasn't realized that while it probably is possible to do it the "old"... (More)
Posted by jondaley on January 15, 2010, 3:51 pm
Category: Reviews
I was searching for Noah's first word on our blog (I found his first signed word: please, but I couldn't find his first spoken word) because Faith has started talking a little, and I don't know exactly what her first word is, probably "hi".  But, today, she has repeatedly said,... (More)
Posted by jondaley on October 15, 2009, 1:22 pm
Category: Reviews
PAUL REVERE VIRUS: This revolutionary virus does not horse around. It warns you of impending hard disk attack: Once, if by LAN; twice if by C. POLITICALLY CORRECT VIRUS: Never identifies itself as a "virus," but instead refers to itself as an "electronic... (More)
Posted by jondaley on September 23, 2009, 11:36 am
Category: Internet
Noah's three year appointment was at the beginning of the month.  He is 42.5 lbs and 41" tall.  They did the hearing and vision tests and the nurse was very impressed.  She said usually at this age, they can hear the sounds but not figure out which ear they're hearing it... (More)
Posted by joyful on September 19, 2009, 4:26 pm
Category: Jonathan, Internet, Noah, Faith
I guess I fail the test , since I answered "no" to both questions, though I suppose Brad Andresen from college (the one who always said of me, "You're more liberal than you think you are.") would be happy to hear that I'd be more likely to think it alright to slap my dad... (More)
Posted by jondaley on May 29, 2009, 10:39 am
Category: Reviews
4/10 - Noah comes up to me, winking, and says, "Mommy, me one eye!"  It was hilarious.  (I couldn't wink until first grade.) 4/11 - Guess which story this is, by Noah: "Let me in.  No, no, no.  Blow up house!" 4/20 - What does Noah say when... (More)
Posted by joyful on April 20, 2009, 6:43 pm
Category: Jonathan, Noah, Faith
Since I am a lazy Debian user, I am not used to compiling things from source.  (sidenote: It is interesting to me how many people from other distributions are fairly used to mucking around in source code, spending hours working on getting a simple package installed)  But, clusterssh... (More)
Posted by jondaley on February 23, 2009, 11:49 am
Category: Reviews
On a Wednesday, two days past my due date, the midwives scheduled me for post-dates testing at the hospital the next week. At first these only consist of a non-stress test (monitoring to be sure the baby's heart rate increases when he moves) and an ultrasound to confirm adequate amniotic... (More)
Posted by joyful on September 21, 2008, 2:58 pm
Category: Faith
I had delayed posting this since I think people were getting tired of hearing about each house that we put an offer on.  But, now that this offer has been accepted, and I don't expect too much trouble with the inspections, I figure it is safe enough to post.I said to a friend the other day,... (More)
Posted by jondaley on July 8, 2008, 1:29 pm
Category: Reviews
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