Search Results: ear

Two Days of Appointments
For the most part, these last two days went pretty well.  Grace was a trooper as we navigated the multiple confusing buildings and talked with many providers and was poked and prodded by various specialists. Her audiology appointment went pretty well.  The doctor was impressed with... (More)
Posted by jondaley on January 12, 2024, 3:18 am
Category: Grace
Dinner in Boston
Had sushi after a day of appointments at the Dana Farber Cancer Institute.    We're staying overnight tonight. Had a lot of blood tests today and then a bunch of meetings with various providers to discuss next steps.   Audiology, dentist evaluations and an... (More)
Posted by jondaley on January 10, 2024, 6:20 pm
Category: Grace
Next Steps: Boston Children's Hospital / Dana Farber Cancer Institute
Due to getting COVID, Grace's transplant date has been re-scheduled and we are currently scheduled to start the prepatory chemo (much stronger than the previous chemo she has received) on January 30th and then the bone marrow transplant a week later. We expect to be in the hospital for at... (More)
Posted by joyful on January 8, 2024, 2:51 pm
Category: Grace
Leukemia
The only known curative therapy for JMML is a bone marrow transplant, so we will be going down to the Boston Children's Hospital/Dana-Farber Cancer Institute . Their team is one of the leading cancer centers for treating JMML. We had our first visit on December 12, and are still processing... (More)
Posted by joyful on January 8, 2024, 2:38 pm
Category: Grace
Dartmouth Emergency Room
The pathology report indicated no parasites, and no bacterial infection, but confirmed the swollen lymph nodes. The doctor said, “I do not like the look of her paleness, and that spleen is really big. We need to see inside; go downstairs and get to imaging right away.” Grace had an... (More)
Posted by joyful on January 8, 2024, 2:37 pm
Category: Grace
Grace: Two Years of Unexplained Medical Issues
(this was written January 2024, referring to Grace's first two years of life) When Grace was about six weeks old, right at the beginning of December 2021 , I noticed that she had “ café au lait spots .” I looked it up on the internet, and discovered that these... (More)
Posted by joyful on January 8, 2024, 2:33 pm
Category: Grace
Capital One Referral Code
I switched to Capital One after being with Citibank for years (decades, actually).  Citibank started a poor security practice of sending you a text message that says "never share this with anyone", and then they ask you to repeat that code over the phone (even after authenticating me with... (More)
Posted by jondaley on January 12, 2022, 11:30 am
Category: Reviews
Heating
Since I'm on a roll of typing out the insulation we've used, I figured I might as well post about our heating systems too. We have five different heating sources for our home, and someday we'll get a sixth... 1a. Oil burner base board radiators. I grew up with base board radiators and I... (More)
Posted by jondaley on October 30, 2020, 10:46 am
Category: General, Reviews
Insulation
Someone just asked for advice on Facebook, and I figured I should save it here so I don't need to type it again when someone asks later.   We've had just about every kind of insulation in our house. So, more than you asked for, but hopefully useful. Also, if you don't know about it,... (More)
Posted by jondaley on October 29, 2020, 10:40 am
Category: General, Reviews
In Memoriam
In honor of the end of World War I one hundred years ago today, I post a picture of Joy hugging the tree that was planted in memory of her great-great-granduncle Harry Faulk. See my mom's Armistice Day post for a few more details of my family's involvment in the war. (More)
Posted by joyful on November 11, 2018, 2:32 pm
Category: General, Joy
Why Jon Is A Great Dad
There are, of course, many examples of why Jon is a great Dad, but this is a particular one I'd like to record. One evening, Jon and I were resting together in our bed.  Suddenly, from the other room, we heard a panicked cry, "Someone help me!!  AAA-AAA-AA-AAAAA!!"  Jon jumped... (More)
Posted by joyful on October 27, 2018, 11:43 am
Category: General, Jeremiah
Pocket Notes
I am posting my backlog of pocket notes. Sometimes details are sparse. 4/1 - JPD, "'I'm goin' back to my work, after watchin' Jonathan do that awesome trick,' said Popcorn Man." 4/1 - Nathaniel started saying "yes" clearly - so cute!! 4/3 - NPD do turtle puzzle, self w/ encouragement... (More)
Posted by joyful on April 30, 2017, 12:00 am
Category: Noah, Faith, Joy, Jeremiah, Nathaniel
Pocket Notes
I am posting my backlog of pocket notes. Sometimes details are sparse. 2/1 - Jonathan, "Even Einstein didn't have a triple-digit IQ." Noah, "Isn't that the guy with screws in his ears?" Jonathan, "No, that's Frankenstein." Noah is losing teeth all the time, I have trouble keeping track... (More)
Posted by joyful on March 31, 2017, 12:00 am
Category: Jonathan, Noah, Faith, Joy, Jeremiah, Nathaniel
Pocket Notes
I am posting my backlog of pocket notes. Sometimes details are sparse. 1/4 - The whole family plays Cousin Memory. Nathaniel repeats incessantly, "I turn! I turn!" January - Nathaniel knows where all the dishes go. He loves helping to unload the dishwasher and he is good at sorting... (More)
Posted by joyful on January 31, 2017, 12:00 am
Category: General, Jonathan, Noah, Joy, Jeremiah, Nathaniel
Pocket Notes
I am posting my backlog of pocket notes. Sometimes details are sparse. 9/3 - Referring to two years ago, Jeremiah said, "The other day of the oott-her day (stretched out, and louder) we tipped over in the big boat." He wanted to know if the motor boat was going to tip over or not. So he... (More)
Posted by joyful on October 31, 2016, 12:00 am
Category: Jonathan, Noah, Joy, Jeremiah, Nathaniel
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