Daley Ponderings

Grace has been steadily improving.  She is not throwing up as much, she's had a few messy diapers that look more normal than she's had in months, or even ever. She had an ultrasound which she slept right through.    Her drain has not been putting out much, so... (More)

From Jon  "[Yesterday's ultrasound] didn't report too much that we didn't already know. There was a little fluid in her abdomen on that side, so I wasn't expecting much, but a fair bit came out last night, I think 100 mls in the last three drains. The fluid near her lungs is almost gone.... (More)

In addition to the drain being installed yesterday, yesterday was moving day.  They have all patients move every month to allow for the room to be completely cleaned.  From the few examples I've seen, that generally means moving to a nicer room, since they can pick the day when the... (More)

The last couple of days have been tough, but today is looking up. At 2:00 this morning, Jon called me to say that her breathing was worse and they were considering bringing her up to the ICU. I called my sister, she prayed for us. 45 minutes later, Jon texted to say that they had increased her... (More)

The last several days have been back and forth. I’ve started several posts in my head, and then they end up changing. The weekend doctors cancelled the stool studies, then the attending on Monday re-ordered them. Jon had some very frustrating conversations with the doctor, but an... (More)

Based on the number of supportive messages we got yesterday, I know you are all eagerly awaiting an update. We arrived at the Dana Farber Jimmy Fund Clinic for lab draws and "here's what's happening" meetings. We sucessfully ordered Grace some food, and then we had to pop across the street... (More)

(this was written January 2024, referring to Grace's first two years of life) When Grace was about six weeks old, right at the beginning of December 2021 , I noticed that she had “ café au lait spots .” I looked it up on the internet, and discovered that these... (More)

Faith had a blast at Star Island with Grammy and Papa. 7/25 - JDD, explaining why he likes to use a certain spoon for his breakfast cereal, "That spoon is special to me, because Grammy gave it to me for Christmas last year." 7/28 or 29 - Joy had a cold and I gave her 1 or 2 nebulizer... (More)

These notes are really old, but not lost. 6/7 - Noah's first lost tooth.  Bottom left front.  It took a very long time for it to come out.  He doesn't play with it at all.. Joy was sitting on the couch.  Faith wanted to do a trick, so we asked Joy to get down.  She... (More)

4/11 - Jonathan likes to be creative with lunches.  He made dill pickle and mustard sandwiches that day. He liked it. As I was keeping track of rainbows I was struck by how many days were sunny.  April 2, 4, 5, 6, 7, 8, 9, 12, 13, 14, 15, 16, 18, 19, 20, 25 4/14 - Faith's first... (More)

If Heather hasn't been writing recently, that means I'm not writing at all... First, the basement - after all of the ongoing water problems, and finding out this year that only fixing the gutters was not going to fix the entire problem, and if one is going to get water a couple times a year,... (More)

Actually, the only thing written in my pocket notes from all this time is that on 11/16, Jon solved the mirror cube with his eyes closed. Jonathan's 7th birthday was a very fun time.  He got a lot of cool presents and had a lot of cool people over to play.  Grandma and Dad-o were... (More)

We now have a dishwasher in our kitchen, which Jon installed himself (running new electric, supply, and drain.) Yeah! There is also a ceiling fan/light fixture in our bedroom to replace the bare bulb fixture.   Yeah! 5/13 - N count to 10 5/13 - Jonathan's practical... (More)

It has been annoying me that the "tagcloud" on the side panel has the largest word "water", (it sizes the words based on the count the frequency of word usage in our most recent posts), but here I go again, adding to the count. We had a bunch of water in our basement again, this time... (More)

Solve: Problem 1: If you have 100 gallons of water entering a 10 gallon sink with a partially clogged drain at 4 gallons per minute, how long will it take for the water to spill over the top and how many cardboard boxes get wet?  Extra credit: how many gallons of water will be left on... (More)