In addition to the drain being installed yesterday, yesterday was moving day.  They have all patients move every month to allow for the room to be completely cleaned.  From the few examples I've seen, that generally means moving to a nicer room, since they can pick the day when the move happens, and so we moved one day early to ensure getting a nicer room.  The new room is at least 50% bigger, and the bed is double the size, and has a huge window sill due to an interesting architecture design that is hard to describe in person, so we'll have to get a picture of it.  If they hadn't done anything with the design, the window would have been facing a wall or maybe a tiny portion of the garden.  But, instead the installed a floor to ceiling mirror diagonally, and then a left-facing window, with a window sill that is probably 6 feet long, and 7 or 8 feet tall.  The result is that there is another "room" that I think with some pillows or blankets, might make for a nice little nook to hang out in behind the bed, so we'll have to try that out.  It probably won't work for Grace, due to all of her connections to the pumps, but I expect the siblings will enjoy it.

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Posted by Jon Daley on March 2, 2024, 7:22 am | Read 578 times | Comments (3)
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The last couple of days have been tough, but today is looking up. At 2:00 this morning, Jon called me to say that her breathing was worse and they were considering bringing her up to the ICU. I called my sister, she prayed for us. 45 minutes later, Jon texted to say that they had increased her oxygen and her breathing was better, so she was not going up to the ICU.
In the morning, Jon discovered that they had actually turned up the wrong oxygen supply, and she was getting the same amount that she had been. So that means that God helped her breathe last night despite the nurse's mistake.
Jon also had a good last rounds conversation with the doctor that he'd been having trouble communicating with. He had some good conversations with nurses about beeping and things, and despite being up partly in the night with the ICU investigation, he got a good amount of sleep. So that is an answer to prayer also.
This afternoon, they put in a drain to her abdomen, and have gotten out a significant amount of fluid so far (I think over 100ccs.) She has been sleeping a lot, so it's hard to know how that's affected her, except that it seems like sleeping peacefully is probably a good thing and that she's more comfortable.
Today is also the day of official engraftment! Her ANC was up to 700 today. Yesterday, there was one reading that was 480, but because they took another reading that was over 500 it still counted, so today is the third day.
Please continue to pray for wisdom about her liver, as we're still not sure what's going on with that.
I've had a lovely time at home, including many conversations, a game of Wingspan, and a beautiful hymn sing. I'll be bringing Faith back down with me in the morning.
Grammy is staying with Grace tonight, Jon is sleeping at the apartment. Grammy helped him pack up the old room and set up the new room. Every 30 days, they need to do a whole thorough room cleaning, so we needed to switch rooms. It is bigger than our old room.

Posted by Heather Daley on March 1, 2024, 10:50 pm | Read 1693 times | Comments (8)
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