Search Results: formula

NG tube out!
Grace has been enjoying walking in the snow and climbing on the plowed parts.      On Wednesday, December 11, 2024, we took her NG tube out on purpose! She had been eating and drinking well, and we trialed no formula for six days. She still gained 0.2 pounds. Now she... (More)
Posted by joyful on December 14, 2024, 2:58 pm
Category: Grace
Thanksgiving for Grace
Sorry we left you hanging about Grace's recent appointments. Here are some things to be thankful for about Grace. She did really well during her audiology appointment. It took a long time, but she followed all the directions and was cooperative as usual. She does still have some hearing loss in... (More)
Posted by joyful on November 25, 2024, 6:59 am
Category: Grace
Day +144: GVHD
Heather is better at writing the updates than I am, though I've been intending to write a few since we've been back in the hospital. She has been doing quite well the last few days and much more cheery.  Nothing like a colonoscopy to cheer you up I guess.  I hadn't been paying... (More)
Posted by jondaley on July 1, 2024, 10:21 pm
Category: Grace
Day +75, No News is Good News
As they say, no news is good news.  Not much exciting has been going on lately.  Grace is eating a fairly regular diet at meals, which has always been pretty small.  Yesterday, she drank a lot, which hasn't been common for her, so we give her 600ml of water via her NG tube, 50ml... (More)
Posted by jondaley on April 23, 2024, 6:40 pm
Category: Pregnancy, Grace
Homeward Bound!
We are headed home on Monday!   Grace will still have at least one clinic visit a week and depending on the labs that week, might have a second appointment, but we decided that for the sake of our entire family, we need to be home and it is worth driving back and forth as needed.... (More)
Posted by jondaley on April 6, 2024, 4:17 am
Category: Grace
Day +55
We went back to the clinic in the late morning after Grace threw up her NG tube.  She did manage to take her meds by mouth that morning, but she doesn't really like it.  They had tested her stool when she had so much diarrhea at her appointment the day before and it did come back... (More)
Posted by joyful on April 3, 2024, 8:44 pm
Category: Grace
Apartment Life
We are settling into our second week of being full-time in the apartment. Our schedule consists of: Adminstering meds 3 times a day and then washing all of the syringes and straws and flushes Keeping her central line clean twice a day ( Boston Children's says cleaning twice a day is... (More)
Posted by jondaley on March 26, 2024, 9:13 pm
Category: Grace
Hospital Time
We've probably said it before, and anyone who has been in a hospital for any length of time knows that any time someone says "soon" that means 2-10 hours, and "tomorrow" means 1-3 days, etc.  So, even though I posted here that it could be Friday, I've been telling myself Monday, though as... (More)
Posted by jondaley on March 15, 2024, 6:34 pm
Category: Grace
Day +26
We have lots of good news to report. Grace has been improving the last couple of days.  Her abdomen measured 53.5 cm, the smallest it has been in weeks.  They have changed her cyclosporin from IV to NG (nasogastric) which is a step towards getting ready to be discharged.  The... (More)
Posted by jondaley on March 5, 2024, 10:54 pm
Category: Grace
Quick Update Day +15
Please pray for Grace's intestines to heal. The doctor is concerned about her continued diarrhea, and so stopped all formula feeds for a few days. She's getting all her nutrition through IV. She will eat bites of things here and there, but is not really taking things by mouth either. This is... (More)
Posted by joyful on February 23, 2024, 9:11 pm
Category: Grace
I Love Word Problems
I was searching for Noah's first word on our blog (I found his first signed word: please, but I couldn't find his first spoken word) because Faith has started talking a little, and I don't know exactly what her first word is, probably "hi".  But, today, she has repeatedly said,... (More)
Posted by jondaley on October 15, 2009, 1:22 pm
Category: Reviews
2008 Taxes
I haven't looked at how much time it took us to do taxes this year - I thought we were doing pretty well, time-wise, until we blew 8 hours or so today finishing them off (or is it them finishing us off, I'm not sure which...) I noticed a number of places where the strange, complicated... (More)
Posted by jondaley on March 20, 2009, 10:21 pm
Category: Reviews
Taxes
Whew... For some reason, taxes took longer than they have in other years.  Part of the time was spent trying to get out of a federal tax penalty for not calculating the estimated taxes correctly.  We spent 14.63 hours (courtesy of worklog ), mostly together working on them.  I... (More)
Posted by jondaley on February 7, 2008, 12:47 pm
Category: General
The Fascinating Ever-Changing Properties of Breastmilk
A woman I know has been having breastfeeding troubles with her three month old. She firmly believes in the superiority of breastmilk and nursing, and so has persisted through the discouragement (implicit and from other people, including pediatrician) and is using a lactation supplementer instead... (More)
Posted by joyful on March 14, 2006, 4:47 pm
Category: General
Options in Childbirth: A Personal Odyssey
Copyright ©2003 Linda Wightman When they put the sugar back into baby food, I should have known it was a bad sign. Progress is often a tidal creek, not a river. Advancement is not inevitable. We gain in one era, or in one area, and lose in another.... (More)
Posted by jondaley on January 10, 2003, 12:00 pm
Category: Isaac, Reviews
culpable-adaptable