Search Results: quickly

MRI Scan
As previously mentioned, Heather noticed a spot in Grace's ear last summer, and when the NF1 doctors heard about it, they were concerned that it might be a plexiform neurofibroma , and so scheduled an MRI for today to take a closer look. While it has shrunk on the surface, it is still there... (More)
Posted by jondaley on February 12, 2025, 5:57 pm
Category: Grace
Thanksgiving for Grace
Sorry we left you hanging about Grace's recent appointments. Here are some things to be thankful for about Grace. She did really well during her audiology appointment. It took a long time, but she followed all the directions and was cooperative as usual. She does still have some hearing loss in... (More)
Posted by joyful on November 25, 2024, 6:59 am
Category: Grace
Central line is out!
Line removal surgery was successful. She did great for the IV. She came out of anesthesia quickly and they were home by 4:30. It is strange to her to have her line out. But next week she'll be able to have her first bath in a year! She is excited about that.  After she got... (More)
Posted by joyful on October 25, 2024, 9:40 pm
Category: Grace
Bone marrow aspirate today
This includes anesthesia and intubation and all that goes along with that. Please pray for her surgery and for the results. Thank you. An "aspirate" in this context means removing a small amount (7 ml in Grace's case usually) of the bone marrow fluid and a biopsy is removing a small chunk of... (More)
Posted by joyful on March 21, 2024, 5:13 am
Category: Grace
Quick Update Day +15
Please pray for Grace's intestines to heal. The doctor is concerned about her continued diarrhea, and so stopped all formula feeds for a few days. She's getting all her nutrition through IV. She will eat bites of things here and there, but is not really taking things by mouth either. This is... (More)
Posted by joyful on February 23, 2024, 9:11 pm
Category: Grace
Some Freedom, Some Nausea
The last post left you with Jon and Grace down in ultrasound. That procedure took two hours. They took hundreds of pictures - exploring all her internal organs. She does have vessel constriction in her liver, wgich is not unexpected with JMML. So since then, she has gotten another prophylactic... (More)
Posted by joyful on February 3, 2024, 5:44 pm
Category: Grace
Heating
Since I'm on a roll of typing out the insulation we've used, I figured I might as well post about our heating systems too. We have five different heating sources for our home, and someday we'll get a sixth... 1a. Oil burner base board radiators. I grew up with base board radiators and I... (More)
Posted by jondaley on October 30, 2020, 10:46 am
Category: General, Reviews
Insulation
Someone just asked for advice on Facebook, and I figured I should save it here so I don't need to type it again when someone asks later.   We've had just about every kind of insulation in our house. So, more than you asked for, but hopefully useful. Also, if you don't know about it,... (More)
Posted by jondaley on October 29, 2020, 10:40 am
Category: General, Reviews
Isaac Memorial Reflection
I typed up my memorial service reflection for a presentation we did at our church recently.  I don't think it has been typed up before, so I thought I'd post it now.  (Am I allowed to be amazed at myself?) Heather's memorial reflection, March 16, 2003 Isaac Christopher Daley - a... (More)
Posted by joyful on June 17, 2016, 2:58 pm
Category: Isaac
Karate Tournament, Standish Maine
On Saturday, March 26th, Jonathan, Faith, Joy and I participated in our first karate tournament. The whole family rose bright and early so we could drive the two hours and 15 minutes to Standish, Maine.  This tournament is relatively small, with only about five dojos participating.... (More)
Posted by joyful on March 31, 2016, 1:14 pm
Category: General, Jonathan, Faith, Joy
January 2016 Pocket Notes
1/4 - JPD, breaking off celery stalk, "Wow! Big whacker!  Bad guy come in our house, me whack him!" 1/4 - NPD signing "more" 1/5 - Joy, holding necklace, "I made it symmetrical, with yellow in the middle." 1/7 - NPD said, "amen" after we did at dinner.  This has happened a few... (More)
Posted by joyful on March 1, 2016, 3:07 pm
Category: Noah, Faith, Joy, Jeremiah, Nathaniel
Swiss Army Knife + Thumb = ER (April 4, 2015)
From an email written to my mom on April 4, 2015 at 7pm. Just after noon, Noah came screaming in from outside.  He was holding one hand with the other and blood was dripping.  I took him straight to the sink to wash off.  He couldn't tell me what had happened and there was... (More)
Posted by joyful on January 8, 2016, 1:22 pm
Category: Noah
March and April 2015 Pocket Notes
3/2 - I told Jeremiah I'd clean up the (play) food because he was still playing with the cars.  He came up to me, gave me a big hug, and said, "Thank you" (sounds like Duh-doo).  So sweet! 3/2 - Faith offered to ask Dad-o to walk them to Joyful Noise, "'Cause...I want you to have... (More)
Posted by joyful on January 8, 2016, 12:04 pm
Category: Jonathan, Noah, Faith, Joy, Jeremiah, Nathaniel
Pocket Notes
More than a month's worth of notes... 10/3 - Joy's diaper was dry all night long.  She went in the potty three or four times.  This was exciting to me and so the next night I prepared to be diaperless.  I spread a waterproof pad, with towels on top.  But she and I are so... (More)
Posted by joyful on November 13, 2011, 11:12 am
Category: General, Jonathan, Noah, Faith, Joy
Imagine There's No Pizza
I recently discovered that due to changes by Facebook and Google, quickly sharing items is harder than it used to be.  There are a couple things I shared recently that I thought good enough to actually type up a post here.  (you may agree or disagree about my choices of "good enough")... (More)
Posted by jondaley on November 9, 2011, 8:29 am
Category: Internet
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