Search Results: boston

Pre-transplant workups
We are heading to Boston tomorrow and Thursday for a myriad of appointments. Faith will also have her donor preparation appointments. I also discovered yesterday that a segment of our friends still had old dates. Because of our Christmas COVID, everything got postponed. So if all goes as... (More)
Posted by joyful on January 9, 2024, 10:07 pm
Category: Grace
Next Steps: Boston Children's Hospital / Dana Farber Cancer Institute
Due to getting COVID, Grace's transplant date has been re-scheduled and we are currently scheduled to start the prepatory chemo (much stronger than the previous chemo she has received) on January 30th and then the bone marrow transplant a week later. We expect to be in the hospital for at... (More)
Posted by joyful on January 8, 2024, 2:51 pm
Category: Grace
Leukemia
The only known curative therapy for JMML is a bone marrow transplant, so we will be going down to the Boston Children's Hospital/Dana-Farber Cancer Institute . Their team is one of the leading cancer centers for treating JMML. We had our first visit on December 12, and are still processing... (More)
Posted by joyful on January 8, 2024, 2:38 pm
Category: Grace
Pocket Notes, 33 Week Appointment, Boys at the Dentist
12/23 - Noah: "Tomorrow's tomorrow is Christmas!" Both Jonathan and Noah were sick in the car on the way to New Hampshire.  Blessedly, they both managed to get everything in the bowls and nothing on anyplace else in the car.  By the time we arrived, they were fine and the rest of... (More)
Posted by joyful on January 19, 2011, 7:00 pm
Category: Jonathan, Pregnancy, Noah, Faith
Dominican Republic: Meeting God in Missions
So, as most of you know, in March I went on my first ever short-term mission trip to Hato Mayor in the Dominican Republic with college students from Penn State, University of Pittsburgh and a handful from other places. It is almost a month later, and I've been meaning to write down... (More)
Posted by jondaley on April 5, 2010, 10:49 pm
Category: Reviews
Switzerland: En Route (30-31 Dec 2008)
Barbara drove us, with our two big suitcases, three backpacks, computer suitcase, and small/hand bag, to the bus station in Concord.  We got there just in time to buy tickets and get on the bus that took us to Logan airport in Boston.  Check-in went smoothly and our biggest suitcase was just... (More)
Posted by joyful on January 13, 2009, 5:35 pm
Category: General
The Alphabet Song
Sung at a reasonable pace, it takes about 30 seconds to sing.  I have been using it as a device for preparing Jonathan (and myself) for the end of a nursing session (usually two times through.)  One not surprising result is that Jonathan is good at singing it himself now.  His one... (More)
Posted by joyful on February 26, 2007, 6:52 pm
Category: Jonathan
Fruit and States
On our flight to Boston, I made sure we had plenty of snacks. Jonathan was eating a fruit leather when he held it up and exclaimed, "Looks like Nebraska!" It really did! A recent set of bits Jonathan has seen is fruits and vegetables including: apple, baby corn, banana, broccoli, cabbage,... (More)
Posted by joyful on May 3, 2006, 4:33 pm
Category: Jonathan
Names
Don't ever name your child the same name as you. It confuses everyone, from doctors to insurance carriers to airlines. USAir and United won't let me check-in online any more, since it can't figure out what to do with Jonathan and me. We both have different frequent flyer numbers, but it is... (More)
Posted by jondaley on April 20, 2006, 8:01 am
Category: Reviews
House in NH
Mom found this house while canoeing in the Merrimack River, and thinks it is just perfect for us. It does look great! There is a lot of land (13 acres) and a lovely place for the Black Rabbit to launch from. We have gotten used to Pittsburgh housing prices, so anything is a shock, but this... (More)
Posted by jondaley on September 26, 2005, 2:59 pm
Category: General
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