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Day +170 Update
We were so relieved and happy to have Jon and Grace with us for Family Camp. Daley summer life has been super full as...
joyful, 26 July 2024 |
Day +146: Discharge Today!
Grace is all set to leave in a few hours - just waiting on paperwork. Her potassium is a little high, but they had taken off her...
Day +144: GVHD
Heather is better at writing the updates than I am, though I've been intending to write a few since we've been back in the hospital....
Waiting for results
Screenshot of a video call on Thursday: Friday's procedures went well. They got plenty of marrow for their tests. The...
Hospital Update
Grace has been on a clear liquid diet until today where she is getting nothing into her stomach until anesthesia at 5:30. She will...
Fever and Admission
When Jon and Grace got back from Dartmouth, Jon asked me to take her temperature. He could feel that she was hot, but the...
Investigating GI issues
Today, Boston called to say they'd like to observe Grace over the weekend and to prepare for admission on Friday. They will likely do a...
Bone Marrow Donation Isn't All Its Cracked Up To Be
When Faith signed up for the donation, she was told to expect one or maybe two days of significant pain, and then a week of pain that...
Belly Hurts, Updated
Today is day +133. (Jon updated this post) Grace has been having belly pain and a lot of mucus in her stool, often with blood as...
Bone marrow aspirate Wednesday
Jon and Grace are heading to Boston on Wednesday for her post-day-100 bone marrow aspirate. Prayers appreciated!
Hope Serena Daley is born!
May 31, 6:50pm 9 pounds, 11 ounces 22" All is well, praise the Lord of Hosts! Romans 15:13 KJV...
Blue Shirt Picture #9
Today is the due date! On Saturday, I had Noah take my traditional Blue Shirt picture. I'm ready to meet this...
Day +100!
This is the day the doctors consider the transplant to be successful. This doesn't mean that she's not still at risk for...
Even a Cold is a Big Deal
I've been meaning to write an update; I've even gotten started on one (labelled day +90: it's now day +97.) Overall, things have been...
Day +75, No News is Good News
As they say, no news is good news. Not much exciting has been going on lately. Grace is eating a fairly regular diet at...
Happy, Happy, Happy!
Grace sings this little Happy song at least once a day. She sang it in the hallway as we were leaving the apartment to go home. I have...
Homeward Bound!
We are headed home on Monday! Grace will still have at least one clinic visit a week and depending on the labs that week,...
Day +55
We went back to the clinic in the late morning after Grace threw up her NG tube. She did manage to take her meds by mouth that...
Apartment Life
We are settling into our second week of being full-time in the apartment. Our schedule consists of: Adminstering meds 3 times a...
Bone marrow aspirate today
This includes anesthesia and intubation and all that goes along with that. Please pray for her surgery and for the results. Thank you....
Pictures
She got her own badge. We got the news that we can leave! Exploring the apartment. Playing with...
Home away from home
Grace did well her first night. I had a harder time because it was like having a young baby - changing diapers in the night; she did go...
Discharge Parade
The kids who have been admitted for any length of time look longingly at the airlock doors that leave the hallway they are not allowed...
Discharged!
We left the hospital at 5pm today and are "home" at our new apartment and working out this phase. Lots of meds to organize and...
Hospital Time
We've probably said it before, and anyone who has been in a hospital for any length of time knows that any time someone says "soon" that...