Bad Behavior has blocked 387 access attempts in the last 7 days.
Powered by LifeTypeToday is Day +500 and we have much to rejoice over!
We are so thankful for Grace's good marrow results, so thankful to reach this milestone.
I feel so much lighter now, and the smaller things that bothered me last week don't seem so bad anymore.
Here are some recent pictures and quotes from our Amazing Grapey Grace Victoria:
Someone was talking about tax, and Grace thought they said tictacs, so I said it was spelled T-A-X, and she replied, "E-A-O-B: tictacs!"
Me: "Why do you have to ask a question about everything I do?"
Grace: "'Cause my voice has lotsa questions!"
When we all had sore throats: "Why Daddy not reading, mom? Daddy's voice is itchy, too?"
Grace's first time painting pottery.
Little pigtails; we think she looks like Boo from Monsters, Inc.
Hiking
She called the Rubik's cube "cuber-solve."
Jeremiah wasn't careful when he sneezed, and Grace said indignantly, "Don't bless you on me!"
She cut her own bangs; "Now they're not in my eyes anymore!"
The test is done and we are back home. Nothing too eventful to report. Our regular physican's assistant did the biopsy, so got to talk to him a little bit, and he is going to research one question that we aren't sure about regarding what 97% chimerism test means.
He did say false positives on a JAK3 test are possible, though very low probability. He agreed that a clerical error would be ideal, but he didn't think that was too likely either.
I said that I've been assuming a positive JAK3 test is a pre-cursor to the chimerism test dropping to a "mixed chimerism", and he is always very careful with his words, and said that it isn't a harbinger or a pre-cursor, but it is a pre-disposition.
We will find out all of the results in a week or so.
The day of prayer and fasting for Grace has been scheduled for this Wednesday, June 11, 2025.
Please observe this in the way that seems best to you. Jon and Grace will be at the Hillsboro Methodist Church (16 Henniker Street, Hillsboro, NH 03244) from 11AM - 6PM.
Pray for complete healing, continued remission, 100% tumor shrinkage, peace, and whatever God puts on your heart. And Thursday is Grace's repeat bone marrow aspirate.
The scriptures that we are clinging to and praying through:
"And he said unto me, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me." - 2 Corinthians 12:9
"It is of the LORD's mercies that we are not consumed, because his compassions fail not. They are new every morning: great is thy faithfulness." - Lamentations 3:22-23
Jon was reading through Grace's test results and saw that the most recent bone marrow report mentioned the JAK3 mutation. He contacted her doctors because we thought that one was gone following the transplant.
Dartmouth doctors can't see her Boston results to compare 
so they contacted the head transplant doctor there. She said that seemed odd given the good chimerism results, but she wants another aspirate as soon as possible to make sure. So that is scheduled for June 12. We aren't clear as to why no one noticed that before. We think the Dartmouth doctors thought it was expected, and I guess the Boston doctors didn't see the results? It does make us wonder if we need to be paying more attention - we try to read all of the medical records, but don't always read through everything, and sometimes it gets pretty technical.