Search Results: apartment

NG tube no fun
I walked home late Monday night, because there was supposed to be this big snowstorm. Jeremiah was already asleep, sprawled all over the bed. In the morning, it was only raining Jeremiah and I had leftover pizza for breakfast, and we walked to the hospital in the rain. The nurses and child... (More)
Posted by joyful on February 14, 2024, 7:45 am
Category: Grace
Day +1
Faith steadily improved throughout the day as she slept through most of it and has now transferred to our Boston apartment. She got a present (mailed to Grace at the hospital) so that was fun. Grace's diaper rash did not get worse overnight, and without oral meds, she ate well and did not... (More)
Posted by joyful on February 9, 2024, 9:41 pm
Category: Grace
Catchup the last few days
The last long update ended February 3 in the evening. In the wee hours of February 4 (Sunday) she got a blood transfusion for her hemoglobin level, which was expected. (They’re killing off her bone marrow, so her own body is not making as much blood.) Sunday morning, she got a dressing... (More)
Posted by joyful on February 7, 2024, 7:51 am
Category: Grace
Some Freedom, Some Nausea
The last post left you with Jon and Grace down in ultrasound. That procedure took two hours. They took hundreds of pictures - exploring all her internal organs. She does have vessel constriction in her liver, wgich is not unexpected with JMML. So since then, she has gotten another prophylactic... (More)
Posted by joyful on February 3, 2024, 5:44 pm
Category: Grace
Days -8 and -7
T-minus seven days and counting. Transplant Day is Day 0 and they count all other days from that. Yesterday, I left off while Grace was still sleeping. She woke up slightly grumpy, but soon was fully awake and her normal self. Chemo every six hours, blood draws every half hour (!) plus... (More)
Posted by joyful on February 1, 2024, 2:21 pm
Category: Grace
Admission Day and Chemo Begins
Based on the number of supportive messages we got yesterday, I know you are all eagerly awaiting an update. We arrived at the Dana Farber Jimmy Fund Clinic for lab draws and "here's what's happening" meetings. We sucessfully ordered Grace some food, and then we had to pop across the street... (More)
Posted by joyful on January 31, 2024, 6:43 am
Category: Grace
Two Days of Appointments
For the most part, these last two days went pretty well.  Grace was a trooper as we navigated the multiple confusing buildings and talked with many providers and was poked and prodded by various specialists. Her audiology appointment went pretty well.  The doctor was impressed with... (More)
Posted by jondaley on January 12, 2024, 3:18 am
Category: Grace
Next Steps: Boston Children's Hospital / Dana Farber Cancer Institute
Due to getting COVID, Grace's transplant date has been re-scheduled and we are currently scheduled to start the prepatory chemo (much stronger than the previous chemo she has received) on January 30th and then the bone marrow transplant a week later. We expect to be in the hospital for at... (More)
Posted by joyful on January 8, 2024, 2:51 pm
Category: Grace
Heating
Since I'm on a roll of typing out the insulation we've used, I figured I might as well post about our heating systems too. We have five different heating sources for our home, and someday we'll get a sixth... 1a. Oil burner base board radiators. I grew up with base board radiators and I... (More)
Posted by jondaley on October 30, 2020, 10:46 am
Category: General, Reviews
Serving vs. Selfishness
I think I have found a key to living selflessly.  When there's an emergency, it's easy to serve.  I see the great need, and I know it's temporary.  It's hard to keep serving in the ordinary, mundane, because it feels like it will never end and the needs don't always seem so great.... (More)
Posted by joyful on January 24, 2014, 9:42 pm
Category: General
Total Church: Why Gospel? Why Community?
It's definitely a telling commentary on my life that the first chapter of Total Church , "Why Gospel?" was less exciting to me than the following chapter, "Why Community?".  I think the former is in my head only, where the latter is in my head and heart.... (More)
Posted by jondaley on March 20, 2010, 10:31 am
Category: Reviews, Bible
Wood Burning
Note: most links in the article are links to our pictures of the wood As I've mentioned previously , we really like our woodstove, and since we've used the gas less than I thought, I decided to get some more wood , and so I found a guy on Craigslist, who had a decent price for... (More)
Posted by jondaley on December 19, 2009, 2:44 pm
Category: General, Reviews
Switzerland: Germany and France (07 Jan 2009)
We intended to get up early and go back to Richard's to finish vacuuming and do a wash (Wednesday - Mittwoch - being his assigned wash day.) However, we spent a while eating breakfast with our hosts.  It turned out that Richard had come home late the night before so he had started a wash first... (More)
Posted by joyful on January 17, 2009, 9:09 am
Category: General
Switzerland: Wedding! (03 Jan 2009)
I woke up around 6am (with alarm) and got ready to go to Valda's to get my hair done.  I got myself some yummy muesli with yogurt and sat down in the living room to eat, only to see the clock and note that I needed to leave in only a few minutes.   I gulped a few more mouthfuls as I put my... (More)
Posted by joyful on January 17, 2009, 7:57 am
Category: General
Switzerland: En Route (30-31 Dec 2008)
Barbara drove us, with our two big suitcases, three backpacks, computer suitcase, and small/hand bag, to the bus station in Concord.  We got there just in time to buy tickets and get on the bus that took us to Logan airport in Boston.  Check-in went smoothly and our biggest suitcase was just... (More)
Posted by joyful on January 13, 2009, 5:35 pm
Category: General
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