Search Results: yesterday

Engraftment, Drainage, and God Answers
The last couple of days have been tough, but today is looking up. At 2:00 this morning, Jon called me to say that her breathing was worse and they were considering bringing her up to the ICU. I called my sister, she prayed for us. 45 minutes later, Jon texted to say that they had increased her... (More)
Posted by joyful on March 1, 2024, 10:50 pm
Category: Grace
Pain and Poop
The last several days have been back and forth. I’ve started several posts in my head, and then they end up changing. The weekend doctors cancelled the stool studies, then the attending on Monday re-ordered them. Jon had some very frustrating conversations with the doctor, but an... (More)
Posted by joyful on February 28, 2024, 7:52 am
Category: Grace
Day 9 a bit better
Grace had a fever overnight so Saturday morning they gave her Tylenol. She seemed a bit better, happier. She even gave me some smiles. She did not throw up all day. I suspect morphine as a cause, and I avoided pushing the button. The Tylenol seems to help enough, so I asked the... (More)
Posted by joyful on February 18, 2024, 9:25 am
Category: Grace
Better but hard
Day +4 Grace has not thrown up at all today! She even had an episode where she ate too much macaroni at once, and was able to spit it out without actually throwing up. She does have evidence of the mucositis in her intestines, and a little bit in her mouth, but that part is doing pretty... (More)
Posted by joyful on February 12, 2024, 6:08 pm
Category: Grace
Day 0 - Harvest
Faith's surgery is scheduled for 7:30 this morning.  We don't know how long it will take for the lab to process her marrow and then get it to Grace yet. Here are some pictures from yesterday. (More)
Posted by joyful on February 8, 2024, 4:25 am
Category: Grace
Days -8 and -7
T-minus seven days and counting. Transplant Day is Day 0 and they count all other days from that. Yesterday, I left off while Grace was still sleeping. She woke up slightly grumpy, but soon was fully awake and her normal self. Chemo every six hours, blood draws every half hour (!) plus... (More)
Posted by joyful on February 1, 2024, 2:21 pm
Category: Grace
Admission Day and Chemo Begins
Based on the number of supportive messages we got yesterday, I know you are all eagerly awaiting an update. We arrived at the Dana Farber Jimmy Fund Clinic for lab draws and "here's what's happening" meetings. We sucessfully ordered Grace some food, and then we had to pop across the street... (More)
Posted by joyful on January 31, 2024, 6:43 am
Category: Grace
Pre-transplant workups
We are heading to Boston tomorrow and Thursday for a myriad of appointments. Faith will also have her donor preparation appointments. I also discovered yesterday that a segment of our friends still had old dates. Because of our Christmas COVID, everything got postponed. So if all goes as... (More)
Posted by joyful on January 9, 2024, 10:07 pm
Category: Grace
Pocket Notes - Joy ties shoes, Heather does pushups, and more
4/3 - I said to Jeremiah, "Your shoes are on the wrong feet, sweetie."  He replied, "I not 'sweetie'.  Joy is 'sweetie'." 4/10 - Joy and I spent a grueling but satisfactory three hours earning our yellow and orange belts, respectively. 4/14 - Jeremiah, "It will be so so so fun if... (More)
Posted by joyful on April 17, 2016, 4:20 pm
Category: Noah, Faith, Joy, Jeremiah, Nathaniel
Every Day Is A Good Day
Yesterday was an exhausting day, so I made sure to get us ready for bed early.  We were in bed by 9:00.  But Jeremiah kicked his covers off just about every hour and asked me to put them back on again.  By 3:30 or so, his medicine had worn off and he was wheezing and... (More)
Posted by joyful on April 23, 2015, 9:34 am
Category: General, Jeremiah
Full Summer/Pocket Notes
Having a dad in the fire department is educational in more than just fire safety: 5/17 - Jon is called to an accident "involving motor vehicle vs. moose" 5/18 - Jonathan reads about moose and siberian tigers on wikipedia ~5 - Joy says "owee here" = outta here 5/20 - jpd 17 lb on our... (More)
Posted by joyful on July 28, 2013, 8:23 am
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah
This is what makes it all worth while
So last week I was worn out with the extra work that unexpected messes bring.  Today I'm tired but happy about it. Yesterday, Jon left very early to go on the church men's retreat.  Our morning at home started out pretty badly (bickering/fighting) and the boys had to go run around... (More)
Posted by joyful on June 8, 2013, 10:59 am
Category: General, Jonathan, Noah
Spammer Statistics
I was poking around the logs today, and saw that of the 500 comments that were attempted on the blog yesterday 0 of them were actual people, and the blog successfully marked all of them as spam, and didn't bother asking me to verify that.  I wonder how long that will last. I regularly... (More)
Posted by jondaley on September 21, 2012, 8:09 am
Category: Internet
Pocket Notes
More than a month's worth of notes... 10/3 - Joy's diaper was dry all night long.  She went in the potty three or four times.  This was exciting to me and so the next night I prepared to be diaperless.  I spread a waterproof pad, with towels on top.  But she and I are so... (More)
Posted by joyful on November 13, 2011, 11:12 am
Category: General, Jonathan, Noah, Faith, Joy
Houston, We Have Mobility
Well, in the three weeks since I last posted, Joy has made major progress in mobility and the rest of the household is still working to adjust! 9/11 - Joy started crawling longer distances with a cross-pattern belly crawl. 9/13 - Every time we go into PIttsburgh, we cross the Allegheny... (More)
Posted by joyful on October 2, 2011, 11:58 am
Category: Jonathan, Noah, Faith, Joy
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