Grace had a fever overnight so Saturday morning they gave her Tylenol. She seemed a bit better, happier. She even gave me some smiles.

She did not throw up all day. I suspect morphine as a cause, and I avoided pushing the button. The Tylenol seems to help enough, so I asked the doctors to schedule it. She spent a good amount of time doing stickers with the physical therapist. This was a good one, knowing just how much to push Grace to activity, but not too much.  It was a lot of work for her little sick body, though, so then she slept a lot. Jonathan came to spend the night with her so Jon and I could have some alone together time. It was really nice to be able to have that. Jon ordered pizza for dinner, and cooked eggs for breakfast. It was almost like a regular life!

Jonathan reports this morning that Grace is looking better and asking to go to the playroom. They had already done some stickers and reading and guitar.

That picture is from yesterday afternoon.

Jon and I are leaving soon to attend Park Street Church together!

 

Posted by Heather Daley on February 18, 2024, 9:25 am | Read 418 times
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So nice that big brother could come and spend some time with her, and give you guys a little respite. Love to you all!

Posted by dstb on February 18, 2024, 9:50 am

It is so great the hospital would let Jonathan give you both the night off. Thank you Jonathan too!

Posted by Dad-o on February 18, 2024, 1:07 pm

It makes sense that if Faith is sensitive to morphine, Grace might also be.

Posted by Linda Wightman on February 18, 2024, 1:08 pm

Bravo Jonathan!

Posted by Kathy Lewis on February 18, 2024, 2:58 pm

Not only was it a night off for Heather and Jon, but I know Grace had really been missing Jonathan. Boston Children's seems to have a more enlightened view than I'm used to of the importance of emotional needs and care.

Posted by Linda Wightman on February 18, 2024, 3:29 pm
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