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Had sushi after a day of appointments at the Dana Farber Cancer Institute. We're staying overnight tonight. Had a lot of blood tests today and then a bunch of meetings with various providers to discuss next steps. Audiology, dentist evaluations and an... (More)

Posted by jondaley on January 10, 2024, 6:20 pm
Category: Grace

Next Steps: Boston Children's Hospital / Dana Farber Cancer Institute

Due to getting COVID, Grace's transplant date has been re-scheduled and we are currently scheduled to start the prepatory chemo (much stronger than the previous chemo she has received) on January 30th and then the bone marrow transplant a week later. We expect to be in the hospital for at... (More)

Posted by joyful on January 8, 2024, 2:51 pm
Category: Grace

Dartmouth Emergency Room

The pathology report indicated no parasites, and no bacterial infection, but confirmed the swollen lymph nodes. The doctor said, “I do not like the look of her paleness, and that spleen is really big. We need to see inside; go downstairs and get to imaging right away.” Grace had an... (More)

Posted by joyful on January 8, 2024, 2:37 pm
Category: Grace

Capital One Referral Code

I switched to Capital One after being with Citibank for years (decades, actually). Citibank started a poor security practice of sending you a text message that says "never share this with anyone", and then they ask you to repeat that code over the phone (even after authenticating me with... (More)

Posted by jondaley on January 12, 2022, 11:30 am
Category: Reviews

Heating

Since I'm on a roll of typing out the insulation we've used, I figured I might as well post about our heating systems too. We have five different heating sources for our home, and someday we'll get a sixth... 1a. Oil burner base board radiators. I grew up with base board radiators and I... (More)

Posted by jondaley on October 30, 2020, 10:46 am
Category: General, Reviews

Insulation

Someone just asked for advice on Facebook, and I figured I should save it here so I don't need to type it again when someone asks later. We've had just about every kind of insulation in our house. So, more than you asked for, but hopefully useful. Also, if you don't know about it,... (More)

Posted by jondaley on October 29, 2020, 10:40 am
Category: General, Reviews

Pocket Notes

I am posting my backlog of pocket notes. Sometimes details are sparse. 2/1 - Jonathan, "Even Einstein didn't have a triple-digit IQ." Noah, "Isn't that the guy with screws in his ears?" Jonathan, "No, that's Frankenstein." Noah is losing teeth all the time, I have trouble keeping track... (More)

Posted by joyful on March 31, 2017, 12:00 am
Category: Jonathan, Noah, Faith, Joy, Jeremiah, Nathaniel

Taking an Interest

Or: How This Mom Started Playing Minecraft They say that a good way to show love is to take an interset in what the other person is interested in, even if you wouldn't care about it on your own. I'm a busy mom and wife of an entrepreneur, right? I don't have time for video games.... (More)

Posted by joyful on July 30, 2016, 6:38 pm
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah

Pocket Notes - Joy ties shoes, Heather does pushups, and more

4/3 - I said to Jeremiah, "Your shoes are on the wrong feet, sweetie." He replied, "I not 'sweetie'. Joy is 'sweetie'." 4/10 - Joy and I spent a grueling but satisfactory three hours earning our yellow and orange belts, respectively. 4/14 - Jeremiah, "It will be so so so fun if... (More)

Posted by joyful on April 17, 2016, 4:20 pm
Category: Noah, Faith, Joy, Jeremiah, Nathaniel

September and October 2015 Pocket Notes

9/2 - NPD definitely pulling up (on bathtub) - see Mom's post of Maggie P. 9/2 - NPD, "ma-ma-ma" "na-na-na" JDD is convinced it means "Mom" 9/2 - Joy, "2+3 is 5. [pause] I learned that in bed." Subsequently also taughtherself other addition facts. 9/2 - Joy making bracelet... (More)

Posted by joyful on February 29, 2016, 8:22 am
Category: Jonathan, Noah, Joy, Jeremiah, Nathaniel

July and August 2015 Pocket Notes

7/6 - Noah is building a paperboard New England village. 7/6 - Jeremiah opened the cupboard under the kitchen sink with the TotLok. He was so proud of himself. "There we go. Open!" (sounds like "deh-do. Opih!") He closed it and opened it several times, each time repeating... (More)

Posted by joyful on February 29, 2016, 8:09 am
Category: Noah, Joy, Jeremiah, Nathaniel

Swiss Army Knife + Thumb = ER (April 4, 2015)

From an email written to my mom on April 4, 2015 at 7pm. Just after noon, Noah came screaming in from outside. He was holding one hand with the other and blood was dripping. I took him straight to the sink to wash off. He couldn't tell me what had happened and there was... (More)

Posted by joyful on January 8, 2016, 1:22 pm
Category: Noah

Nathaniel Is Born!

Once again, we were blessed to have Grandma and Dad-o with us for a birth. Jeremiah was still too clingy on Mommy for us to be comfortable having him at the birth. He did well completely away from me, but had trouble when nearby and I was unavailable. That is exactly the situation a... (More)

Posted by joyful on January 6, 2016, 1:36 pm
Category: Nathaniel

Blogging and Catching Up

I am the kind of person who enjoys writing. I process my thoughts well by writing, and I like recording my thoughts and my family's life. This year, I will be posting more. At first, most will be catch-up posts. I have a whole year of pocket notes to enter, not to mention... (More)

Posted by joyful on January 6, 2016, 9:09 am
Category: General

Giant List of Pocket Notes

I'm very much behind on the blog. But I have kept the pocket notes safely typed up in my email. So here goes. In June, the kids and I made a trip to Florida to visit my parents, and my sister and her kids visited, too. 6/14 - Joy, "Mommy! I saw a dinosaur!" (It was a... (More)

Posted by joyful on December 22, 2014, 2:04 pm
Category: General, Jonathan, Pregnancy, Noah, Faith, Joy, Jeremiah