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Bad Behavior has blocked 333 access attempts in the last 7 days.

For the most part, these last two days went pretty well. Grace was a trooper as we navigated the multiple confusing buildings and talked with many providers and was poked and prodded by various specialists. Her audiology appointment went pretty well. The doctor was impressed with... (More)

Posted by jondaley on January 12, 2024, 3:18 am
Category: Grace

Dinner in Boston

Had sushi after a day of appointments at the Dana Farber Cancer Institute. We're staying overnight tonight. Had a lot of blood tests today and then a bunch of meetings with various providers to discuss next steps. Audiology, dentist evaluations and an... (More)

Posted by jondaley on January 10, 2024, 6:20 pm
Category: Grace

Next Steps: Boston Children's Hospital / Dana Farber Cancer Institute

Due to getting COVID, Grace's transplant date has been re-scheduled and we are currently scheduled to start the prepatory chemo (much stronger than the previous chemo she has received) on January 30th and then the bone marrow transplant a week later. We expect to be in the hospital for at... (More)

Posted by joyful on January 8, 2024, 2:51 pm
Category: Grace

Leukemia

The only known curative therapy for JMML is a bone marrow transplant, so we will be going down to the Boston Children's Hospital/Dana-Farber Cancer Institute . Their team is one of the leading cancer centers for treating JMML. We had our first visit on December 12, and are still processing... (More)

Posted by joyful on January 8, 2024, 2:38 pm
Category: Grace

Dartmouth Emergency Room

The pathology report indicated no parasites, and no bacterial infection, but confirmed the swollen lymph nodes. The doctor said, “I do not like the look of her paleness, and that spleen is really big. We need to see inside; go downstairs and get to imaging right away.” Grace had an... (More)

Posted by joyful on January 8, 2024, 2:37 pm
Category: Grace

Insulation

Someone just asked for advice on Facebook, and I figured I should save it here so I don't need to type it again when someone asks later. We've had just about every kind of insulation in our house. So, more than you asked for, but hopefully useful. Also, if you don't know about it,... (More)

Posted by jondaley on October 29, 2020, 10:40 am
Category: General, Reviews

Taking an Interest

Or: How This Mom Started Playing Minecraft They say that a good way to show love is to take an interset in what the other person is interested in, even if you wouldn't care about it on your own. I'm a busy mom and wife of an entrepreneur, right? I don't have time for video games.... (More)

Posted by joyful on July 30, 2016, 6:38 pm
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah

Isaac Memorial Reflection

I typed up my memorial service reflection for a presentation we did at our church recently. I don't think it has been typed up before, so I thought I'd post it now. (Am I allowed to be amazed at myself?) Heather's memorial reflection, March 16, 2003 Isaac Christopher Daley - a... (More)

Posted by joyful on June 17, 2016, 2:58 pm
Category: Isaac

Nathaniel's First Enjoyable Snow

April 4, it snowed six inches. The next day, I wrote this: Today the snow is still there and the sun is out and the sky is bright blue. It feels like a gorgeous February day! But since it is April, Nathaniel is just that much more developed that he can enjoy this snow day to... (More)

Posted by joyful on April 17, 2016, 3:59 pm
Category: Nathaniel

Karate Tournament, Standish Maine

On Saturday, March 26th, Jonathan, Faith, Joy and I participated in our first karate tournament. The whole family rose bright and early so we could drive the two hours and 15 minutes to Standish, Maine. This tournament is relatively small, with only about five dojos participating.... (More)

Posted by joyful on March 31, 2016, 1:14 pm
Category: General, Jonathan, Faith, Joy

Catch Up Pocket Notes

12/4 - F putting on chapstick. Joy recalls, "Last time my lips sting. Now my lips better." 12/6 - JDD, in a growly voice, with a straw stuck in his teeth and the other end in a glass of water, "I am the savage, saber-toothed mosquito!" 12/6 - JPD upper right primary incisor 12/7 -... (More)

Posted by joyful on January 18, 2014, 8:52 am
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah

Pocket Notes

9/13 - A Friday. Jonathan had been asking me if he could read Harry Potter for a while. I told him I needed to talk to Daddy about whether we thought he was ready, but I kept forgetting. The strategy that worked was asking me in Daddy's presence so I didn't have time to forget. ... (More)

Posted by joyful on October 19, 2013, 8:08 am
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah

Marriage Retreat

Heather and I had the opportunity to attend a marriage retreat with 10 or so couples from our church this weekend, up at Rangeley Lake in Maine (thanks Scott, for the house!) We were the youngest couple (by far, the average marriage length represented there was 31 years), and we haven't... (More)

Posted by jondaley on October 7, 2013, 12:59 pm
Category: General

Pocket Notes

Faith had a blast at Star Island with Grammy and Papa. 7/25 - JDD, explaining why he likes to use a certain spoon for his breakfast cereal, "That spoon is special to me, because Grammy gave it to me for Christmas last year." 7/28 or 29 - Joy had a cold and I gave her 1 or 2 nebulizer... (More)

Posted by joyful on September 14, 2013, 11:30 am
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah

Full Summer/Pocket Notes

Having a dad in the fire department is educational in more than just fire safety: 5/17 - Jon is called to an accident "involving motor vehicle vs. moose" 5/18 - Jonathan reads about moose and siberian tigers on wikipedia ~5 - Joy says "owee here" = outta here 5/20 - jpd 17 lb on our... (More)

Posted by joyful on July 28, 2013, 8:23 am
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah