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Based on the number of supportive messages we got yesterday, I know you are all eagerly awaiting an update. We arrived at the Dana Farber Jimmy Fund Clinic for lab draws and "here's what's happening" meetings. We sucessfully ordered Grace some food, and then we had to pop across the street... (More)

Posted by joyful on January 31, 2024, 6:43 am
Category: Grace

Third Dentist...

Warning: I'm feeling better now, but the following post pretty accurately how I felt for most of today. After a good appointment in Hillsboro, they still wanted us to go to a pediatric dentist who was familiar with chemo/transplant issues, so Heather headed up to Dartmouth this morning in the... (More)

Posted by jondaley on January 16, 2024, 11:51 pm
Category: Grace

Leukemia

The only known curative therapy for JMML is a bone marrow transplant, so we will be going down to the Boston Children's Hospital/Dana-Farber Cancer Institute . Their team is one of the leading cancer centers for treating JMML. We had our first visit on December 12, and are still processing... (More)

Posted by joyful on January 8, 2024, 2:38 pm
Category: Grace

Pocket Notes

I am posting my backlog of pocket notes. Sometimes details are sparse. 2/1 - Jonathan, "Even Einstein didn't have a triple-digit IQ." Noah, "Isn't that the guy with screws in his ears?" Jonathan, "No, that's Frankenstein." Noah is losing teeth all the time, I have trouble keeping track... (More)

Posted by joyful on March 31, 2017, 12:00 am
Category: Jonathan, Noah, Faith, Joy, Jeremiah, Nathaniel

Mother's Day 2016

Highlights from my Mother's Day, in addition to playing handbells: Nathaniel went in to the bid kids' room to give Jeremiah a morning hug and "hewwo!" Nathaniel belly laughs. Jonathan sang all the verses of Fairest Lord Jesus while washing dishes. (More)

Posted by joyful on June 17, 2016, 3:30 pm
Category: General, Jonathan, Nathaniel

To Mom

Happy Mother's Day! I love you. Here is something I played in church this morning and thought of you. How Can I Keep From Singing? Love, Heather (More)

Posted by joyful on May 8, 2016, 12:24 pm
Category: General

Pocket Notes - Joy ties shoes, Heather does pushups, and more

4/3 - I said to Jeremiah, "Your shoes are on the wrong feet, sweetie." He replied, "I not 'sweetie'. Joy is 'sweetie'." 4/10 - Joy and I spent a grueling but satisfactory three hours earning our yellow and orange belts, respectively. 4/14 - Jeremiah, "It will be so so so fun if... (More)

Posted by joyful on April 17, 2016, 4:20 pm
Category: Noah, Faith, Joy, Jeremiah, Nathaniel

May and June 2015 Pocket Notes

5/6 - Jonathan is as tall as Mom! 5/7 - Faith, "Ramen numerals" 5/8 - Jeremiah, "Don't touch it." I think that's his first three word phrase. 5/9 - Jeremiah was looking at the New Bible Dictionary that has a painting of the last supper (or something like it - Jesus in the middle... (More)

Posted by joyful on February 29, 2016, 7:57 am
Category: Jonathan, Noah, Faith, Joy, Jeremiah, Nathaniel

Nathaniel Is Born!

Once again, we were blessed to have Grandma and Dad-o with us for a birth. Jeremiah was still too clingy on Mommy for us to be comfortable having him at the birth. He did well completely away from me, but had trouble when nearby and I was unavailable. That is exactly the situation a... (More)

Posted by joyful on January 6, 2016, 1:36 pm
Category: Nathaniel

Every Day Is A Good Day

Yesterday was an exhausting day, so I made sure to get us ready for bed early. We were in bed by 9:00. But Jeremiah kicked his covers off just about every hour and asked me to put them back on again. By 3:30 or so, his medicine had worn off and he was wheezing and... (More)

Posted by joyful on April 23, 2015, 9:34 am
Category: General, Jeremiah

Pocket Notes

5/1 - Joy playing with even/odd dot cards. Didn't quite get the concept but sometimes was lucky, so I praised the correct answers. Then 6/2 - much more consistently correct. 5/1 - Jeremiah, watching the kids in karate class, copying them - doing punches from the "en guarde"... (More)

Posted by joyful on June 9, 2014, 9:44 pm
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah

Daley Vacation Washington DC

Got a bunch of spam comments and then when I was looking at posts, the boys pointed out that my last post was a month ago and I said "trip to DC goes in a separate post"... So here we go. When we went into downtown to see the sights, we split up into smaller groups. Jonathan,... (More)

Posted by joyful on April 23, 2014, 7:03 am
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah

Pocket Notes

2/15 - JPD walked up to me and hugged my knees. He now does this often. 2/19 - JDD quotes from The Incredibles, with an Indian flair: "This is your automated captain speaking. Would you like more samosas?" 2/24 - JDD "What's the difference between lo mein and chow mein, and why isn't... (More)

Posted by joyful on March 23, 2014, 5:44 am
Category: Jonathan, Noah, Faith, Joy, Jeremiah

Pocket Notes

11/8 - It was gusty and the maple seeds were being blown off our big tree by the thousands. It was such an amazing sight! The little helicopters were fluttering everywhere, even swarming like a host of grasshoppers or little birds. The grand picture was the swarming, and then... (More)

Posted by joyful on December 5, 2013, 8:31 am
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah

Pocket Notes

I'll take this opportunity, home from church with two sick kids, to post my notes. 10/19 - JDD, "Most fun things are spoiled if you HAVE to do them." I forget the context of his quote but it reminded me of my thought at the harvest supper. The middle and high school youth groups... (More)

Posted by joyful on November 3, 2013, 9:45 am
Category: General, Jonathan, Faith, Joy, Jeremiah