Jon wrote today:

When I said it was a "bad day" the other day, a nurse corrected me and said "good moments and bad moments".

This morning was good and she played in the playroom for quite a while. She did throw up after eating. But has continued to ask for food, and hasn't thrown up yet...

She looks brighter than she has been the last few days.  Her white blood cell count has gone up from zero, though the doctor stopped by to chat since we didn't see her this morning.  She said it is common for the white blood cell counts to "flicker" as best as I can figure out, they measure the non-active white blood cells and so if they are out working on healing some area of the body, they don't get counted, so if those 30 get assigned to go work tomorrow, her count could go "down" but that isn't mean anything bad.

So, in short, it is possible this is a turnaround, but it might go up and down for a little while still.

Attending Park Street Church was a balm.  The music washes over me like a warm, cleansing rain.  They are beginning a Lenten study and today's sermon was titled "Lenten Joy?"  The choir anthem was "O Love that Will Not Let Me Go" with the second verse being:

O joy that seekest me through pain, I cannot close my heart to thee.
I trace the rainbow through the rain
and feel the promise is not vain
that morn shall tearless be.

All the music seemed to be aimed right at me.  We even sang In Christ Alone, which of course I could not get through without sobbing.  We went up to the front for prayer after the service.  The pastor recognized Jon as Grace Victoria's dad and Jon introduced me. Jonathan texted to say that Grace had thrown up twice and then was sleeping.

It is an easy T ride from the hospital/apartment area to Park Street Church, so that is nice.  I got off near the hospital and headed up to Grace and Jonathan; Jon went another stop to go back to the apartment to switch out laundry.  We hung out with Jonathan and Grace for a while; she did a bunch of stickers.  She did not throw up again, and she did eat five cheerios.  Jonathan reported that, while being in the hospital wasn't exactly a fun time, it was not as bad as he had been led to expect.  It was good to see him and see him take care of Grace so well.

She fell asleep on my lap and has been sleeping since then.  She did react, even in her sleep, to the ursodiol when the nurse put it in her feeding tube. We spent the evening reading together and playing board game arena with the kids at home.

It seems the good moments for the last couple of days have outweighed the bad moments.  Thank you all for constantly holding us up in prayer.

 

Posted by Heather Daley on February 18, 2024, 8:40 pm | Read 128 times
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Comments

Grace is taking a drug that is supposed to dissolve gallstones? Truly cancer treatment is a bizarre world.

Posted by Linda Wightman on February 18, 2024, 8:58 pm

It's so good to hear that Park Street Church was the balm you needed. I can't believe they sang "In Christ Alone." You know I would have cried, too. "O Love that Will Not Let Me Go" is one of my favorite hymns.

Posted by Linda Wightman on February 18, 2024, 9:17 pm

It's one of the liver medicines.

Posted by joyful on February 18, 2024, 9:55 pm

Oh Love that will not let me go! What a beautiful hymn and beautiful truthful words. Praying for all of you.

Posted by barbara berwick on February 18, 2024, 10:04 pm

Park Street is having their annual meeting next week and so published a report which was good to read. It is a lot larger than it seems. They do have three services, but the report mentioned that they have 50(!) small groups, which it is great to hear about churches that prioritize small groups - we have missed that since being at Providence.

They also have a "Minister of Community" or something like that, and that sounds like a pretty good job.

Posted by jondaley on February 18, 2024, 11:10 pm

So beautiful, the way the service and songs spoke right to you. And to watch your man of a son take care of his sister (and you :)). Love you.

Posted by alissa on February 19, 2024, 10:43 am

"O Love" is one of our favorites, too. Prayers and positive thoughts continuing from Florida!

Posted by Susan (and Alan) Davis on February 19, 2024, 1:42 pm
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