Daley Ponderings

Jon wrote today:

When I said it was a "bad day" the other day, a nurse corrected me and said "good moments and bad moments".

This morning was good and she played in the playroom for quite a while. She did throw up after eating. But has continued to ask for food, and hasn't thrown up yet...

She looks brighter than she has been the last few days.  Her white blood cell count has gone up from zero, though the doctor stopped by to chat since we didn't see her this morning.  She said it is common for the white blood cell counts to "flicker" as best as I can figure out, they measure the non-active white blood cells and so if they are out working on healing some area of the body, they don't get counted, so if those 30 get assigned to go work tomorrow, her count could go "down" but that isn't mean anything bad.

So, in short, it is possible this is a turnaround, but it might go up and down for a little while still.

Attending Park Street Church was a balm.  The music washes over me like a warm, cleansing rain.  They are beginning a Lenten study and today's sermon was titled "Lenten Joy?"  The choir anthem was "O Love that Will Not Let Me Go" with the second verse being:

All the music seemed to be aimed right at me.  We even sang In Christ Alone, which of course I could not get through without sobbing.  We went up to the front for prayer after the service.  The pastor recognized Jon as Grace Victoria's dad and Jon introduced me. Jonathan texted to say that Grace had thrown up twice and then was sleeping.

It is an easy T ride from the hospital/apartment area to Park Street Church, so that is nice.  I got off near the hospital and headed up to Grace and Jonathan; Jon went another stop to go back to the apartment to switch out laundry.  We hung out with Jonathan and Grace for a while; she did a bunch of stickers.  She did not throw up again, and she did eat five cheerios.  Jonathan reported that, while being in the hospital wasn't exactly a fun time, it was not as bad as he had been led to expect.  It was good to see him and see him take care of Grace so well.

She fell asleep on my lap and has been sleeping since then.  She did react, even in her sleep, to the ursodiol when the nurse put it in her feeding tube. We spent the evening reading together and playing board game arena with the kids at home.

It seems the good moments for the last couple of days have outweighed the bad moments.  Thank you all for constantly holding us up in prayer.