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Day 0 - Harvest
Faith's surgery is scheduled for 7:30 this morning. We don't know how long it will take for the lab to process her marrow and then...
joyful, 8 February 2024 |
Day -1
I woke up at 6AM because it turns out that is when the hospital does weekly generator checks which involves the power going out, which...
Catchup the last few days
The last long update ended February 3 in the evening. In the wee hours of February 4 (Sunday) she got a blood transfusion for her...
T-shirts are in!
The first round of tshirt orders has come in! Local people can come pick up anytime. Please bring payment when you come...
Nausea
Grace is not feeling so great today. I approved for them to give her another anti-nausea med in the hope that she will feel like eating....
Some Freedom, Some Nausea
The last post left you with Jon and Grace down in ultrasound. That procedure took two hours. They took hundreds of pictures - exploring...
Days -8 and -7
T-minus seven days and counting. Transplant Day is Day 0 and they count all other days from that. Yesterday, I left off while Grace...
Admission Day and Chemo Begins
Based on the number of supportive messages we got yesterday, I know you are all eagerly awaiting an update. We arrived at the Dana...
A Snow Day From God
Today is our last day all together as a family for a while. God blessed it by sending a beautiful six inches of snow that cancelled our...
Team Victory!
Joy has designed a tshirt for Grace's cancer journey. We are selling them as a fundraiser for David's House . They cost...
Fertility preservation
Monday, Grace had pre-transplant bone marrow aspiration and bone biopsy. That's kind of boring. The interesting surgery came right after...
Her smile is still cute
Jon and I both went with Grace up to Dartmouth today. The dentist met with us pre-op and said after looking at the x-rays, she...
Appointments today
Please pray for Grace's appointments today. Extensive dental work at 11AM under sedation (fillings and crowns), and sedation means...
Third Dentist...
Warning: I'm feeling better now, but the following post pretty accurately how I felt for most of today. After a good appointment in...
Sunday blessings
We went to the Methodist Church today. It was so refreshing. It was communion Sunday, which was such a blessing. It's been a long time...
Two Days of Appointments
For the most part, these last two days went pretty well. Grace was a trooper as we navigated the multiple confusing buildings and...
Dinner in Boston
Had sushi after a day of appointments at the Dana Farber Cancer Institute. We're staying overnight tonight....
Pre-transplant workups
We are heading to Boston tomorrow and Thursday for a myriad of appointments. Faith will also have her donor preparation appointments....
Next Steps: Boston Children's Hospital / Dana Farber...
Due to getting COVID, Grace's transplant date has been re-scheduled and we are currently scheduled to start the prepatory chemo (much...
Leukemia
The only known curative therapy for JMML is a bone marrow transplant, so we will be going down to the Boston Children's...
Dartmouth Emergency Room
The pathology report indicated no parasites, and no bacterial infection, but confirmed the swollen lymph nodes. The doctor said,...
Grace: Two Years of Unexplained Medical Issues
(this was written January 2024, referring to Grace's first two years of life) When Grace was about six weeks old, right at the...
Pregnant!
We were intentionally not posting online to allow for some in-person notifications, but we are happy to now announce that we are...
7th child, doesn't get a blog post...
We haven't been blogging much, just living life and having fun together. But, it is sort of sad that Grace didn't even have...
Capital One Referral Code
I switched to Capital One after being with Citibank for years (decades, actually). Citibank started a poor security practice of...