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Better but hard
Day +4 Grace has not thrown up at all today! She even had an episode where she ate too much macaroni at once, and was able to spit it...
joyful, 12 February 2024 |
Wanting to eat but not keeping it down
Days +2 and +3 have been full of desire for eating but not the ability to keep it down. Also, bare bottom and oxygen blowing has been...
Day +1
Faith steadily improved throughout the day as she slept through most of it and has now transferred to our Boston apartment. She got a...
Day 0 - My Blood For Yours
My place beside you, My blood for yours, Till the Green Ember rises, Or the end of the world! One of our favorite...
Day 0 - Waiting
Faith's surgery went well. Her vitals stayed stable the whole time and they are all happy with how it went. She said coming out of...
Day 0 - Harvest
Faith's surgery is scheduled for 7:30 this morning. We don't know how long it will take for the lab to process her marrow and then...
Day -1
I woke up at 6AM because it turns out that is when the hospital does weekly generator checks which involves the power going out, which...
Catchup the last few days
The last long update ended February 3 in the evening. In the wee hours of February 4 (Sunday) she got a blood transfusion for her...
T-shirts are in!
The first round of tshirt orders has come in! Local people can come pick up anytime. Please bring payment when you come...
Nausea
Grace is not feeling so great today. I approved for them to give her another anti-nausea med in the hope that she will feel like eating....
Some Freedom, Some Nausea
The last post left you with Jon and Grace down in ultrasound. That procedure took two hours. They took hundreds of pictures - exploring...
Days -8 and -7
T-minus seven days and counting. Transplant Day is Day 0 and they count all other days from that. Yesterday, I left off while Grace...
Admission Day and Chemo Begins
Based on the number of supportive messages we got yesterday, I know you are all eagerly awaiting an update. We arrived at the Dana...
A Snow Day From God
Today is our last day all together as a family for a while. God blessed it by sending a beautiful six inches of snow that cancelled our...
Team Victory!
Joy has designed a tshirt for Grace's cancer journey. We are selling them as a fundraiser for David's House . They cost...
Fertility preservation
Monday, Grace had pre-transplant bone marrow aspiration and bone biopsy. That's kind of boring. The interesting surgery came right after...
Her smile is still cute
Jon and I both went with Grace up to Dartmouth today. The dentist met with us pre-op and said after looking at the x-rays, she...
Appointments today
Please pray for Grace's appointments today. Extensive dental work at 11AM under sedation (fillings and crowns), and sedation means...
Third Dentist...
Warning: I'm feeling better now, but the following post pretty accurately how I felt for most of today. After a good appointment in...
Sunday blessings
We went to the Methodist Church today. It was so refreshing. It was communion Sunday, which was such a blessing. It's been a long time...
Two Days of Appointments
For the most part, these last two days went pretty well. Grace was a trooper as we navigated the multiple confusing buildings and...
Dinner in Boston
Had sushi after a day of appointments at the Dana Farber Cancer Institute. We're staying overnight tonight....
Pre-transplant workups
We are heading to Boston tomorrow and Thursday for a myriad of appointments. Faith will also have her donor preparation appointments....
Next Steps: Boston Children's Hospital / Dana Farber...
Due to getting COVID, Grace's transplant date has been re-scheduled and we are currently scheduled to start the prepatory chemo (much...
Leukemia
The only known curative therapy for JMML is a bone marrow transplant, so we will be going down to the Boston Children's...