Daley Ponderings

Grace has had a fun birthday overall, with balloons and presents and blowing out the candles. But tonight, during her line flush, the white side busted a hole through, up above the clamp, near the Y . We did our best with a paper clip clamp, but Jon took Grace to the fire station... (More)

From Jon  "[Yesterday's ultrasound] didn't report too much that we didn't already know. There was a little fluid in her abdomen on that side, so I wasn't expecting much, but a fair bit came out last night, I think 100 mls in the last three drains. The fluid near her lungs is almost gone.... (More)

Noah did a good job driving in terrible Boston traffic, but it meant we got home late and I didn't get to talk to Jon for very long last night. The ultrasound revealed that Grace definitely has problems with her liver; she has also been in more pain. By the time I talked to them, she was content... (More)

T-minus seven days and counting. Transplant Day is Day 0 and they count all other days from that. Yesterday, I left off while Grace was still sleeping. She woke up slightly grumpy, but soon was fully awake and her normal self. Chemo every six hours, blood draws every half hour (!) plus... (More)

Based on the number of supportive messages we got yesterday, I know you are all eagerly awaiting an update. We arrived at the Dana Farber Jimmy Fund Clinic for lab draws and "here's what's happening" meetings. We sucessfully ordered Grace some food, and then we had to pop across the street... (More)

11/2 - Jeremiah, "Aunt Prudence gave us this one."  perfect grammar 11/3 - Jonathan, "Mom, did you know that if you take the 'c' out of 'record' and add 'er' at the end, it becomes 'reorder'?" 11/3 - Jeremiah, walking backwards with finger in front of his face, "Me try to pick [scab],... (More)

7/6 - Noah is building a paperboard New England village. 7/6 - Jeremiah opened the cupboard under the kitchen sink with the TotLok. He was so proud of himself.  "There we go.  Open!"  (sounds like "deh-do. Opih!") He closed it and opened it several times, each time repeating... (More)

Got a bunch of spam comments and then when I was looking at posts, the boys pointed out that my last post was a month ago and I said "trip to DC goes in a separate post"...  So here we go. When we went into downtown to see the sights, we split up into smaller groups.  Jonathan,... (More)

Faith had a blast at Star Island with Grammy and Papa. 7/25 - JDD, explaining why he likes to use a certain spoon for his breakfast cereal, "That spoon is special to me, because Grammy gave it to me for Christmas last year." 7/28 or 29 - Joy had a cold and I gave her 1 or 2 nebulizer... (More)

Having a dad in the fire department is educational in more than just fire safety: 5/17 - Jon is called to an accident "involving motor vehicle vs. moose" 5/18 - Jonathan reads about moose and siberian tigers on wikipedia ~5 - Joy says "owee here" = outta here 5/20 - jpd 17 lb on our... (More)

My due date was February 21. Jonathan, Noah, and Faith had all been exactly five days late. Joy was early, but we weren't sure of her date and the more we thought about it the more we figured she probably had been late as well. So we had Linda and Porter schedule their flight to arrive... (More)

We are still working on renovating our new house, and thus we are still living with Jon's generous parents.  And since we are living here, we are schooling here.  But a comment from his mom gave me some insight into some non-homeschoolers' comments about homeschooling. We usually... (More)

These notes are really old, but not lost. 6/7 - Noah's first lost tooth.  Bottom left front.  It took a very long time for it to come out.  He doesn't play with it at all.. Joy was sitting on the couch.  Faith wanted to do a trick, so we asked Joy to get down.  She... (More)

Pictures from April till now are posted. (See link on the sidebar) 5/24 - I don't remember the context, but the quote from Jonathan is, "Well, the definition of 'Mom' is basically 'tired person'." 5/25 - Noah showed me his newfound skill of pumping a swing from standstill to as high as he... (More)

4/11 - Jonathan likes to be creative with lunches.  He made dill pickle and mustard sandwiches that day. He liked it. As I was keeping track of rainbows I was struck by how many days were sunny.  April 2, 4, 5, 6, 7, 8, 9, 12, 13, 14, 15, 16, 18, 19, 20, 25 4/14 - Faith's first... (More)