Search Results: food

Good moments, Bad moments
Jon wrote today: When I said it was a "bad day" the other day, a nurse corrected me and said "good moments and bad moments". This morning was good and she played in the playroom for quite a while. She did throw up after eating. But has continued to ask for food, and hasn't... (More)
Posted by joyful on February 18, 2024, 8:40 pm
Category: Grace
Better but hard
Day +4 Grace has not thrown up at all today! She even had an episode where she ate too much macaroni at once, and was able to spit it out without actually throwing up. She does have evidence of the mucositis in her intestines, and a little bit in her mouth, but that part is doing pretty... (More)
Posted by joyful on February 12, 2024, 6:08 pm
Category: Grace
Catchup the last few days
The last long update ended February 3 in the evening. In the wee hours of February 4 (Sunday) she got a blood transfusion for her hemoglobin level, which was expected. (They’re killing off her bone marrow, so her own body is not making as much blood.) Sunday morning, she got a dressing... (More)
Posted by joyful on February 7, 2024, 7:51 am
Category: Grace
Admission Day and Chemo Begins
Based on the number of supportive messages we got yesterday, I know you are all eagerly awaiting an update. We arrived at the Dana Farber Jimmy Fund Clinic for lab draws and "here's what's happening" meetings. We sucessfully ordered Grace some food, and then we had to pop across the street... (More)
Posted by joyful on January 31, 2024, 6:43 am
Category: Grace
Her smile is still cute
Jon and I both went with Grace up to Dartmouth today.  The dentist met with us pre-op and said after looking at the x-rays, she thought her front teeth looked really bad and she expected to have to take out the four upper front teeth.  This just seemed horrible to us, but I signed the... (More)
Posted by joyful on January 19, 2024, 8:51 pm
Category: Grace
Two Days of Appointments
For the most part, these last two days went pretty well.  Grace was a trooper as we navigated the multiple confusing buildings and talked with many providers and was poked and prodded by various specialists. Her audiology appointment went pretty well.  The doctor was impressed with... (More)
Posted by jondaley on January 12, 2024, 3:18 am
Category: Grace
Dartmouth Emergency Room
The pathology report indicated no parasites, and no bacterial infection, but confirmed the swollen lymph nodes. The doctor said, “I do not like the look of her paleness, and that spleen is really big. We need to see inside; go downstairs and get to imaging right away.” Grace had an... (More)
Posted by joyful on January 8, 2024, 2:37 pm
Category: Grace
Grace: Two Years of Unexplained Medical Issues
(this was written January 2024, referring to Grace's first two years of life) When Grace was about six weeks old, right at the beginning of December 2021 , I noticed that she had “ café au lait spots .” I looked it up on the internet, and discovered that these... (More)
Posted by joyful on January 8, 2024, 2:33 pm
Category: Grace
Daley Vacation 2016 - Baltimore
Here are the brief notes I put together about our family vacation to Baltimore.  This year, the entire Daley clan was able to come (Barbara, Phil, and all their children and grandchildren!) Thursday drive down very good, even through NYC, thanks to google traffic. Looked up heights and... (More)
Posted by joyful on June 17, 2016, 2:36 pm
Category: General
February 2016 Pocket Notes
2/2 - Noah and I walked past the food pantry on distribution day, and saw a friend of ours heading there. He asked if she was donating food and I explained that she was receiving food.  He wondered why she needed to get food from the food pantry, and we had a good discussion about the... (More)
Posted by joyful on March 1, 2016, 3:16 pm
Category: General, Jonathan, Noah, Joy, Jeremiah, Nathaniel
May and June 2015 Pocket Notes
5/6 - Jonathan is as tall as Mom! 5/7 - Faith, "Ramen numerals" 5/8 - Jeremiah, "Don't touch it."  I think that's his first three word phrase. 5/9 - Jeremiah was looking at the New Bible Dictionary that has a painting of the last supper (or something like it - Jesus in the middle... (More)
Posted by joyful on February 29, 2016, 7:57 am
Category: Jonathan, Noah, Faith, Joy, Jeremiah, Nathaniel
March and April 2015 Pocket Notes
3/2 - I told Jeremiah I'd clean up the (play) food because he was still playing with the cars.  He came up to me, gave me a big hug, and said, "Thank you" (sounds like Duh-doo).  So sweet! 3/2 - Faith offered to ask Dad-o to walk them to Joyful Noise, "'Cause...I want you to have... (More)
Posted by joyful on January 8, 2016, 12:04 pm
Category: Jonathan, Noah, Faith, Joy, Jeremiah, Nathaniel
Daley Vacation Washington DC
Got a bunch of spam comments and then when I was looking at posts, the boys pointed out that my last post was a month ago and I said "trip to DC goes in a separate post"...  So here we go. When we went into downtown to see the sights, we split up into smaller groups.  Jonathan,... (More)
Posted by joyful on April 23, 2014, 7:03 am
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah
Pocket Notes
11/8 - It was gusty and the maple seeds were being blown off our big tree by the thousands.  It was such an amazing sight!  The little helicopters were fluttering everywhere, even swarming like a host of grasshoppers or little birds.  The grand picture was the swarming, and then... (More)
Posted by joyful on December 5, 2013, 8:31 am
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah
Marriage Retreat
Heather and I had the opportunity to attend a marriage retreat with 10 or so couples from our church this weekend, up at Rangeley Lake in Maine (thanks Scott, for the house!) We were the youngest couple (by far, the average marriage length represented there was 31 years), and we haven't... (More)
Posted by jondaley on October 7, 2013, 12:59 pm
Category: General
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