Search Results: medicine

Some Freedom, Some Nausea
The last post left you with Jon and Grace down in ultrasound. That procedure took two hours. They took hundreds of pictures - exploring all her internal organs. She does have vessel constriction in her liver, wgich is not unexpected with JMML. So since then, she has gotten another prophylactic... (More)
Posted by joyful on February 3, 2024, 5:44 pm
Category: Grace
Admission Day and Chemo Begins
Based on the number of supportive messages we got yesterday, I know you are all eagerly awaiting an update. We arrived at the Dana Farber Jimmy Fund Clinic for lab draws and "here's what's happening" meetings. We sucessfully ordered Grace some food, and then we had to pop across the street... (More)
Posted by joyful on January 31, 2024, 6:43 am
Category: Grace
Two Days of Appointments
For the most part, these last two days went pretty well.  Grace was a trooper as we navigated the multiple confusing buildings and talked with many providers and was poked and prodded by various specialists. Her audiology appointment went pretty well.  The doctor was impressed with... (More)
Posted by jondaley on January 12, 2024, 3:18 am
Category: Grace
Every Day Is A Good Day
Yesterday was an exhausting day, so I made sure to get us ready for bed early.  We were in bed by 9:00.  But Jeremiah kicked his covers off just about every hour and asked me to put them back on again.  By 3:30 or so, his medicine had worn off and he was wheezing and... (More)
Posted by joyful on April 23, 2015, 9:34 am
Category: General, Jeremiah
Pocket Notes
12/26 - Daley Christmas.  Baby cousin G gets a pretty dress.  People exclaim over it. Big brother C says, "I'm not impressed." 12/28 - C, "Dad, [cousin] O says 'ellow' for 'yellow'". Ben, "That's ok, bud." C, "It's not ok with me." 12/30 - Joy counts to 30. 1/5 - Jeremiah gets... (More)
Posted by joyful on January 22, 2015, 2:41 pm
Category: Jonathan, Pregnancy, Noah, Joy, Jeremiah
Pocket Notes
9/13 - A Friday. Jonathan had been asking me if he could read Harry Potter for a while.  I told him I needed to talk to Daddy about whether we thought he was ready, but I kept forgetting.  The strategy that worked was asking me in Daddy's presence so I didn't have time to forget. ... (More)
Posted by joyful on October 19, 2013, 8:08 am
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah
Pocket Notes
Faith had a blast at Star Island with Grammy and Papa. 7/25 - JDD, explaining why he likes to use a certain spoon for his breakfast cereal, "That spoon is special to me, because Grammy gave it to me for Christmas last year." 7/28 or 29 - Joy had a cold and I gave her 1 or 2 nebulizer... (More)
Posted by joyful on September 14, 2013, 11:30 am
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah
Lots of Notes
Faith has started calling Jonathan, "Ohnny-int"  This is related to how she says medicine ("meddy-int") and other words that end in /n/. She also says her own name, which sounds unfortunately rather like "Hate" but the /t/ is a bit softer, maybe halfway between that and "Hathe".... (More)
Posted by joyful on April 15, 2011, 9:13 am
Category: Jonathan, Noah, Faith, Joy
Pocket Notes
Noah has discovered convertibles and really wants one.  In a parking lot one day, we watched a man put up his roof and that was really cool.  When I explained the reasons we wouldn't get one (too expensive, not enough seats for our family) Jonathan decided on our next car.  A... (More)
Posted by joyful on May 30, 2010, 9:42 am
Category: Jonathan, Noah, Faith
Remember, Remember, The Fifth of November
We began the day learning about Guy Fawkes Day (Jonathan says now if we ever visit England he wants to visit at the beginning of November so he can participate in the festivities.)  We ended the day by taking Daddy to the ER.  Jon's notes in italics . It was quarter of five... (More)
Posted by joyful on November 8, 2009, 7:19 pm
Category: General
Lyme Daley
After we hear others talking about ticks everywhere, we hadn't seen any at all in our yard.  And then Jonathan gets Lyme Disease.  He had a fever and slept all day for two days, and then he was better so we didn't think anything of it.  A few days later, he gets this red rash on... (More)
Posted by joyful on June 12, 2009, 7:51 pm
Category: Jonathan
Corneal Abrasion
Sunday morning, after playing outside before church, Jonathan came to me complaining that his eye hurt.  It was red and watering, but I could not see any foreign object.  It continued to be irritated, so I wondered if it might be pinkeye. The pain would come in waves, hurting... (More)
Posted by joyful on October 3, 2007, 12:00 pm
Category: Jonathan
Tandem Nursing
This post has been in my head since shortly after Noah was born, but taking the time to write it has not been on my priority list until now. Before I begin, I would like to say that my purpose in writing is simply an explanation of what we're doing and why I think it's great, and an... (More)
Posted by joyful on September 25, 2006, 1:19 pm
Category: Jonathan, Noah
Noah's Birth Story
Wednesday, June 28. 2:30am. My water broke! That was different. I woke Jon up with the news and he called the midwife while I went up to go to the bathroom and to wake up my parents. The midwife said it could be a long time before labor gets going after water breaking, but that we could... (More)
Posted by joyful on July 1, 2006, 3:15 pm
Category: Noah
Extra Life
In the Electronic Engineering Times this week: The skills needed to defeat Bowser are similar to those required of laparoscopic surgeons, contends Dr. James Rosser, developer of a videogame for surgical trainees."There is, indeed, a positive correlation between videogaming and increased hand-eye... (More)
Posted by jondaley on May 3, 2005, 10:00 am
Category: Reviews
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