Search Results: news

Homeward Bound!
We are headed home on Monday!   Grace will still have at least one clinic visit a week and depending on the labs that week, might have a second appointment, but we decided that for the sake of our entire family, we need to be home and it is worth driving back and forth as needed.... (More)
Posted by jondaley on April 6, 2024, 4:17 am
Category: Grace
Pictures
She got her own badge. We got the news that we can leave! Exploring the apartment. Playing with Faith and Joy. Swinging at the park. (More)
Posted by joyful on March 19, 2024, 9:25 pm
Category: Grace
Discharged!
We left the hospital at 5pm today and are "home" at our new apartment and working out this phase.  Lots of meds to organize and schedule.  Getting used to a quiet room, so now we can actually hear the feed machine, where I never really heard it before.   Heather will be... (More)
Posted by jondaley on March 17, 2024, 10:03 pm
Category: Grace
Discharge?
The doctors started talking about discharge last Friday and that continued on Monday.  They decided to turn off the continuous morphine and moving more of her medicines to her NG tube. I was pretty skeptical that she was going to tolerate only on occasional morphine and I expected her to... (More)
Posted by jondaley on March 13, 2024, 5:30 am
Category: Grace
Day +27
Grace had a great day today, despite staying up until after midnight (I went to sleep, but I asked the nurse in the morning, and she stayed up reading her new book and trying to not let the nurses check her oxygen levels since that would involve taking away her light...) She came to rounds in... (More)
Posted by jondaley on March 6, 2024, 11:34 pm
Category: Grace
Day +26
We have lots of good news to report. Grace has been improving the last couple of days.  Her abdomen measured 53.5 cm, the smallest it has been in weeks.  They have changed her cyclosporin from IV to NG (nasogastric) which is a step towards getting ready to be discharged.  The... (More)
Posted by jondaley on March 5, 2024, 10:54 pm
Category: Grace
A step better
From Jon  "[Yesterday's ultrasound] didn't report too much that we didn't already know. There was a little fluid in her abdomen on that side, so I wasn't expecting much, but a fair bit came out last night, I think 100 mls in the last three drains. The fluid near her lungs is almost gone.... (More)
Posted by joyful on March 3, 2024, 11:53 am
Category: Grace
Pain and Poop
The last several days have been back and forth. I’ve started several posts in my head, and then they end up changing. The weekend doctors cancelled the stool studies, then the attending on Monday re-ordered them. Jon had some very frustrating conversations with the doctor, but an... (More)
Posted by joyful on February 28, 2024, 7:52 am
Category: Grace
Two Days of Appointments
For the most part, these last two days went pretty well.  Grace was a trooper as we navigated the multiple confusing buildings and talked with many providers and was poked and prodded by various specialists. Her audiology appointment went pretty well.  The doctor was impressed with... (More)
Posted by jondaley on January 12, 2024, 3:18 am
Category: Grace
Jeremiah's Birth Story
My due date was February 21. Jonathan, Noah, and Faith had all been exactly five days late. Joy was early, but we weren't sure of her date and the more we thought about it the more we figured she probably had been late as well. So we had Linda and Porter schedule their flight to arrive... (More)
Posted by joyful on February 24, 2013, 5:55 pm
Category: Jeremiah
Food Additives: Corn Syrup, Red #40, Aspartame, and Frozen Dairy Desserts
The first blog post in a long time, I realize.  And I won't make any promises about more frequent updates, etc. I have found that I am writing on facebook more often, and reviewing products online (got a Kindle for Christmas, and so have been reading and reviewing on Amazon) and... (More)
Posted by jondaley on January 18, 2013, 9:27 am
Category: Reviews
Tim Hawkins: Chick-fil-A song
(More)
Posted by jondaley on August 25, 2012, 5:05 pm
Category: Internet
Pregnant While Moving for the Third Time
I thought this deserved its own post.  I am pregnant!  The baby is due right around Joy's second birthday, the end of February. So far, I've been feeling pretty well.  I get a bit queasy if I don't eat something every couple of hours, and I do get tired a lot (especially when... (More)
Posted by joyful on July 31, 2012, 8:29 pm
Category: Pregnancy
The Big Move
How do I begin? Not really at the beginning. June 15, we sold the house we were living in and drove to New Hampshire in two moving trucks and a minivan. (A very hearty and grateful "thank you!" to Ron and Ron for driving the trucks!) The days preceding that day were extremely full,... (More)
Posted by joyful on July 31, 2012, 8:00 pm
Category: General, Jonathan, Noah, Faith, Joy
Notes Catchup Part II, the Whirlwind
Last catchup ended on the weekend of the fire company banquet.  That weekend was also the beginning of the new adventure.  Two different people called up to ask about looking to buy our house.  No, not the one we're fixing up to sell.  The one we're living in.  Well, ok,... (More)
Posted by joyful on April 1, 2012, 11:02 am
Category: General, Jonathan, Noah, Faith, Joy
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