Search Results: regular

Days -8 and -7
T-minus seven days and counting. Transplant Day is Day 0 and they count all other days from that. Yesterday, I left off while Grace was still sleeping. She woke up slightly grumpy, but soon was fully awake and her normal self. Chemo every six hours, blood draws every half hour (!) plus... (More)
Posted by joyful on February 1, 2024, 2:21 pm
Category: Grace
Admission Day and Chemo Begins
Based on the number of supportive messages we got yesterday, I know you are all eagerly awaiting an update. We arrived at the Dana Farber Jimmy Fund Clinic for lab draws and "here's what's happening" meetings. We sucessfully ordered Grace some food, and then we had to pop across the street... (More)
Posted by joyful on January 31, 2024, 6:43 am
Category: Grace
Two Days of Appointments
For the most part, these last two days went pretty well.  Grace was a trooper as we navigated the multiple confusing buildings and talked with many providers and was poked and prodded by various specialists. Her audiology appointment went pretty well.  The doctor was impressed with... (More)
Posted by jondaley on January 12, 2024, 3:18 am
Category: Grace
Leukemia
The only known curative therapy for JMML is a bone marrow transplant, so we will be going down to the Boston Children's Hospital/Dana-Farber Cancer Institute . Their team is one of the leading cancer centers for treating JMML. We had our first visit on December 12, and are still processing... (More)
Posted by joyful on January 8, 2024, 2:38 pm
Category: Grace
Grace: Two Years of Unexplained Medical Issues
(this was written January 2024, referring to Grace's first two years of life) When Grace was about six weeks old, right at the beginning of December 2021 , I noticed that she had “ café au lait spots .” I looked it up on the internet, and discovered that these... (More)
Posted by joyful on January 8, 2024, 2:33 pm
Category: Grace
Pocket Notes - Joy ties shoes, Heather does pushups, and more
4/3 - I said to Jeremiah, "Your shoes are on the wrong feet, sweetie."  He replied, "I not 'sweetie'.  Joy is 'sweetie'." 4/10 - Joy and I spent a grueling but satisfactory three hours earning our yellow and orange belts, respectively. 4/14 - Jeremiah, "It will be so so so fun if... (More)
Posted by joyful on April 17, 2016, 4:20 pm
Category: Noah, Faith, Joy, Jeremiah, Nathaniel
Swiss Army Knife + Thumb = ER (April 4, 2015)
From an email written to my mom on April 4, 2015 at 7pm. Just after noon, Noah came screaming in from outside.  He was holding one hand with the other and blood was dripping.  I took him straight to the sink to wash off.  He couldn't tell me what had happened and there was... (More)
Posted by joyful on January 8, 2016, 1:22 pm
Category: Noah
Nathaniel Is Born!
Once again, we were blessed to have Grandma and Dad-o with us for a birth. Jeremiah was still too clingy on Mommy for us to be comfortable having him at the birth.  He did well completely away from me, but had trouble when nearby and I was unavailable.  That is exactly the situation a... (More)
Posted by joyful on January 6, 2016, 1:36 pm
Category: Nathaniel
Marriage Retreat
Heather and I had the opportunity to attend a marriage retreat with 10 or so couples from our church this weekend, up at Rangeley Lake in Maine (thanks Scott, for the house!) We were the youngest couple (by far, the average marriage length represented there was 31 years), and we haven't... (More)
Posted by jondaley on October 7, 2013, 12:59 pm
Category: General
Pocket Notes
Faith had a blast at Star Island with Grammy and Papa. 7/25 - JDD, explaining why he likes to use a certain spoon for his breakfast cereal, "That spoon is special to me, because Grammy gave it to me for Christmas last year." 7/28 or 29 - Joy had a cold and I gave her 1 or 2 nebulizer... (More)
Posted by joyful on September 14, 2013, 11:30 am
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah
My Mother-In-Law's Insight Into Homeschooling
We are still working on renovating our new house, and thus we are still living with Jon's generous parents.  And since we are living here, we are schooling here.  But a comment from his mom gave me some insight into some non-homeschoolers' comments about homeschooling. We usually... (More)
Posted by joyful on September 29, 2012, 9:15 am
Category: General
Spammer Statistics
I was poking around the logs today, and saw that of the 500 comments that were attempted on the blog yesterday 0 of them were actual people, and the blog successfully marked all of them as spam, and didn't bother asking me to verify that.  I wonder how long that will last. I regularly... (More)
Posted by jondaley on September 21, 2012, 8:09 am
Category: Internet
Pocket Notes
11/18 - Jonathan, when meaning to say cylindrical said, "cylindicular" 11/23 - Joy took her first step, accidentally. 11/26 - Joy climbed up a whole flight of stairs.  This was the first time she had done more than one small step.  She was so thrilled with her newfound skill... (More)
Posted by joyful on December 18, 2011, 2:16 pm
Category: Jonathan, Noah, Joy
Joy Ellen Daley - Born This Morning!
Heather will surely write a more detailed post for those wanting those details, but for now, a shorter post will have to do. We got home from a friend's birthday party last night, and Heather was having some contractions, but since the due date was still a ways away, figured it couldn't... (More)
Posted by jondaley on February 23, 2011, 6:03 pm
Category: Pregnancy, Joy
Work Year End Update
Heather asked me to give her the monthly time logs for invoices today, so I took the opportunity to run my brand new script that shows how I've spent my time over the entire year. I averaged: 13.7 hours a week on directly billable work 7.6 hours a week on maintaining the company, phone... (More)
Posted by jondaley on December 23, 2010, 11:40 am
Category: Reviews
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