Search Results: bone

The only known curative therapy for JMML is a bone marrow transplant, so we will be going down to the Boston Children's Hospital/Dana-Farber Cancer Institute . Their team is one of the leading cancer centers for treating JMML. We had our first visit on December 12, and are still processing... (More)
Posted by joyful on January 8, 2024, 2:38 pm
Category: Grace
The pathology report indicated no parasites, and no bacterial infection, but confirmed the swollen lymph nodes. The doctor said, “I do not like the look of her paleness, and that spleen is really big. We need to see inside; go downstairs and get to imaging right away.” Grace had an... (More)
Posted by joyful on January 8, 2024, 2:37 pm
Category: Grace
4/11 - Jonathan likes to be creative with lunches.  He made dill pickle and mustard sandwiches that day. He liked it. As I was keeping track of rainbows I was struck by how many days were sunny.  April 2, 4, 5, 6, 7, 8, 9, 12, 13, 14, 15, 16, 18, 19, 20, 25 4/14 - Faith's first... (More)
Posted by joyful on May 20, 2012, 11:13 am
Category: General, Jonathan, Noah, Faith, Joy
I haven't done one of those Facebook lists in a while, and a couple friends filled this one out, so I thought I'd join in.  This list apparently comes from the BBC, who said that the average person has only read 6 of these.  Seems like a small number to me, but since the average... (More)
Posted by jondaley on November 25, 2010, 11:18 am
Category: Reviews
I'll start with most recent and then go to my pocket notes.  Jonathan and Faith both had well child checkups yesterday.  As much as it seems like it would be easier to have two checkups together, it really isn't.  I'll go back to scheduling them separately.  It wasn't too... (More)
Posted by joyful on December 2, 2009, 12:29 pm
Category: Jonathan, Faith
We began the day learning about Guy Fawkes Day (Jonathan says now if we ever visit England he wants to visit at the beginning of November so he can participate in the festivities.)  We ended the day by taking Daddy to the ER.  Jon's notes in italics . It was quarter of five... (More)
Posted by joyful on November 8, 2009, 7:19 pm
Category: General
On a Wednesday, two days past my due date, the midwives scheduled me for post-dates testing at the hospital the next week. At first these only consist of a non-stress test (monitoring to be sure the baby's heart rate increases when he moves) and an ultrasound to confirm adequate amniotic... (More)
Posted by joyful on September 21, 2008, 2:58 pm
Category: Faith
On Wednesday, we walked to the Shursave for a regular shopping trip. The only difference in this trip was the lack of milk in the bottom of the cart, since I had just gotten some at Trader Joe's. But it made a big difference for Jonathan! He pulled the cart the whole way home by himself,... (More)
Posted by joyful on June 27, 2008, 7:42 am
Category: Jonathan
Our new church has a youth orchestra that Jon has become part of.  They did a few concerts at local nursing homes last weekend and I got some pictures and videos.  The main reason for this post is to  explain the videos.  Our camera isn't primarily a video camera, so it... (More)
Posted by joyful on June 9, 2007, 7:27 pm
Category: General
Here are the things I've written down over the last few days - and I had the foresight to take the paper out of my pocket before going sailing!   4/26 -  Jonathan, playing with legos or something: "Dam it, dam it, dam it." Mommy: "Jonathan, please don't say... (More)
Posted by joyful on April 30, 2007, 11:24 am
Category: Jonathan, Noah
I wrote it out formally about a year ago but it never got onto the blog. So below is the story. I'll post a comment on Jonathan's first post with a link to this one. Jonathan's Gentle Birth by Heather Daley This is Jonathan's birth story, but to really appreciate it, the... (More)
Posted by joyful on March 24, 2006, 11:39 am
Category: Jonathan
I just got back from the courthouse. The judge upheld all charges. The prosecution added a fourth charge as well, that I didn't really understand -- It was a little hard to hear everything. There is an additional charge of endangering the welfare of a minor, I think having to do with... (More)
Posted by jondaley on June 3, 2004, 2:00 pm
Category: Isaac
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