Search Results: update

Catchup the last few days
The last long update ended February 3 in the evening. In the wee hours of February 4 (Sunday) she got a blood transfusion for her hemoglobin level, which was expected. (They’re killing off her bone marrow, so her own body is not making as much blood.) Sunday morning, she got a dressing... (More)
Posted by joyful on February 7, 2024, 7:51 am
Category: Grace
T-shirts are in!
The first round of tshirt orders has come in! Local people can come pick up anytime.  Please bring payment when you come if you haven't prepaid.  Noah will be mailing faraway people's shirts soon. I'll update later with how much has been raised for David's House.  We... (More)
Posted by joyful on February 6, 2024, 2:58 pm
Category: Grace
Some Freedom, Some Nausea
The last post left you with Jon and Grace down in ultrasound. That procedure took two hours. They took hundreds of pictures - exploring all her internal organs. She does have vessel constriction in her liver, wgich is not unexpected with JMML. So since then, she has gotten another prophylactic... (More)
Posted by joyful on February 3, 2024, 5:44 pm
Category: Grace
Admission Day and Chemo Begins
Based on the number of supportive messages we got yesterday, I know you are all eagerly awaiting an update. We arrived at the Dana Farber Jimmy Fund Clinic for lab draws and "here's what's happening" meetings. We sucessfully ordered Grace some food, and then we had to pop across the street... (More)
Posted by joyful on January 31, 2024, 6:43 am
Category: Grace
Her smile is still cute
Jon and I both went with Grace up to Dartmouth today.  The dentist met with us pre-op and said after looking at the x-rays, she thought her front teeth looked really bad and she expected to have to take out the four upper front teeth.  This just seemed horrible to us, but I signed the... (More)
Posted by joyful on January 19, 2024, 8:51 pm
Category: Grace
Capital One Referral Code
I switched to Capital One after being with Citibank for years (decades, actually).  Citibank started a poor security practice of sending you a text message that says "never share this with anyone", and then they ask you to repeat that code over the phone (even after authenticating me with... (More)
Posted by jondaley on January 12, 2022, 11:30 am
Category: Reviews
November and December 2015 Pocket Notes
11/2 - Jeremiah, "Aunt Prudence gave us this one."  perfect grammar 11/3 - Jonathan, "Mom, did you know that if you take the 'c' out of 'record' and add 'er' at the end, it becomes 'reorder'?" 11/3 - Jeremiah, walking backwards with finger in front of his face, "Me try to pick [scab],... (More)
Posted by joyful on February 29, 2016, 8:41 am
Category: Jonathan, Noah, Faith, Joy, Jeremiah, Nathaniel
Swiss Army Knife + Thumb = ER (April 4, 2015)
From an email written to my mom on April 4, 2015 at 7pm. Just after noon, Noah came screaming in from outside.  He was holding one hand with the other and blood was dripping.  I took him straight to the sink to wash off.  He couldn't tell me what had happened and there was... (More)
Posted by joyful on January 8, 2016, 1:22 pm
Category: Noah
2013 Daley Christmas Letter
2013 Daley Christmas Letter (More)
Posted by joyful on January 1, 2014, 5:34 pm
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah
Pocket Notes
Faith had a blast at Star Island with Grammy and Papa. 7/25 - JDD, explaining why he likes to use a certain spoon for his breakfast cereal, "That spoon is special to me, because Grammy gave it to me for Christmas last year." 7/28 or 29 - Joy had a cold and I gave her 1 or 2 nebulizer... (More)
Posted by joyful on September 14, 2013, 11:30 am
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah
Full Summer/Pocket Notes
Having a dad in the fire department is educational in more than just fire safety: 5/17 - Jon is called to an accident "involving motor vehicle vs. moose" 5/18 - Jonathan reads about moose and siberian tigers on wikipedia ~5 - Joy says "owee here" = outta here 5/20 - jpd 17 lb on our... (More)
Posted by joyful on July 28, 2013, 8:23 am
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah
Pocket Notes
3/30 - Jeremiah started cooing.  He also can make minimal forward progress along the bed when waking up. Joy says "my do it" for many things.  She also pronounces "water" correctly now instead of saying "wow".  She's also really good at remembering to say thank you. (Sounds... (More)
Posted by joyful on April 23, 2013, 7:10 am
Category: Jonathan, Noah, Joy, Jeremiah
Pocket Notes
Oh, yes.  It has been half a year since my last pocket notes post... 9/6 - Joy says "yum" and "yummy", "all done/gone" (sounds like ah-doh), "where shoe?", and "mine" (sounds like my) 9/25 - Faith reading the Bible to Joy: "When you want Mommy to cuddle with you but she can't, you... (More)
Posted by joyful on March 19, 2013, 5:16 pm
Category: General, Jonathan, Isaac, Pregnancy, Noah, Faith, Joy, Jeremiah
Food Additives: Corn Syrup, Red #40, Aspartame, and Frozen Dairy Desserts
The first blog post in a long time, I realize.  And I won't make any promises about more frequent updates, etc. I have found that I am writing on facebook more often, and reviewing products online (got a Kindle for Christmas, and so have been reading and reviewing on Amazon) and... (More)
Posted by jondaley on January 18, 2013, 9:27 am
Category: Reviews
Pocket Notes
9/19 - Joy  has been telling me when she needs a new diaper (patting her bottom) but this day, she got out the changing pad and wipes, set up the pad on the bathroom floor, put a new diaper on top of the wipes box, lay down on the pad, and called for me. 9/20 - Noah is definitely our... (More)
Posted by joyful on September 29, 2012, 8:24 am
Category: General, Jonathan, Pregnancy, Noah, Faith, Joy
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