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For the most part, these last two days went pretty well. Grace was a trooper as we navigated the multiple confusing buildings and talked with many providers and was poked and prodded by various specialists. Her audiology appointment went pretty well. The doctor was impressed with... (More)

Posted by jondaley on January 12, 2024, 3:18 am
Category: Grace

Dinner in Boston

Had sushi after a day of appointments at the Dana Farber Cancer Institute. We're staying overnight tonight. Had a lot of blood tests today and then a bunch of meetings with various providers to discuss next steps. Audiology, dentist evaluations and an... (More)

Posted by jondaley on January 10, 2024, 6:20 pm
Category: Grace

Leukemia

The only known curative therapy for JMML is a bone marrow transplant, so we will be going down to the Boston Children's Hospital/Dana-Farber Cancer Institute . Their team is one of the leading cancer centers for treating JMML. We had our first visit on December 12, and are still processing... (More)

Posted by joyful on January 8, 2024, 2:38 pm
Category: Grace

Dartmouth Emergency Room

The pathology report indicated no parasites, and no bacterial infection, but confirmed the swollen lymph nodes. The doctor said, “I do not like the look of her paleness, and that spleen is really big. We need to see inside; go downstairs and get to imaging right away.” Grace had an... (More)

Posted by joyful on January 8, 2024, 2:37 pm
Category: Grace

Heating

Since I'm on a roll of typing out the insulation we've used, I figured I might as well post about our heating systems too. We have five different heating sources for our home, and someday we'll get a sixth... 1a. Oil burner base board radiators. I grew up with base board radiators and I... (More)

Posted by jondaley on October 30, 2020, 10:46 am
Category: General, Reviews

May and June 2015 Pocket Notes

5/6 - Jonathan is as tall as Mom! 5/7 - Faith, "Ramen numerals" 5/8 - Jeremiah, "Don't touch it." I think that's his first three word phrase. 5/9 - Jeremiah was looking at the New Bible Dictionary that has a painting of the last supper (or something like it - Jesus in the middle... (More)

Posted by joyful on February 29, 2016, 7:57 am
Category: Jonathan, Noah, Faith, Joy, Jeremiah, Nathaniel

Nathaniel Is Born!

Once again, we were blessed to have Grandma and Dad-o with us for a birth. Jeremiah was still too clingy on Mommy for us to be comfortable having him at the birth. He did well completely away from me, but had trouble when nearby and I was unavailable. That is exactly the situation a... (More)

Posted by joyful on January 6, 2016, 1:36 pm
Category: Nathaniel

Sailing

We went sailing today in the Black Rabbit, which is the name of our Flying Junior. I do need to find out the history of it, because I think I don't have it quite correct. But Heather's grandpa have it to her when she was a kid and we've sailed it since we were married. It needed a... (More)

Posted by jondaley on August 5, 2015, 8:58 pm
Category: General

Every Day Is A Good Day

Yesterday was an exhausting day, so I made sure to get us ready for bed early. We were in bed by 9:00. But Jeremiah kicked his covers off just about every hour and asked me to put them back on again. By 3:30 or so, his medicine had worn off and he was wheezing and... (More)

Posted by joyful on April 23, 2015, 9:34 am
Category: General, Jeremiah

Giant List of Pocket Notes

I'm very much behind on the blog. But I have kept the pocket notes safely typed up in my email. So here goes. In June, the kids and I made a trip to Florida to visit my parents, and my sister and her kids visited, too. 6/14 - Joy, "Mommy! I saw a dinosaur!" (It was a... (More)

Posted by joyful on December 22, 2014, 2:04 pm
Category: General, Jonathan, Pregnancy, Noah, Faith, Joy, Jeremiah

Pocket Notes

11/8 - It was gusty and the maple seeds were being blown off our big tree by the thousands. It was such an amazing sight! The little helicopters were fluttering everywhere, even swarming like a host of grasshoppers or little birds. The grand picture was the swarming, and then... (More)

Posted by joyful on December 5, 2013, 8:31 am
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah

Pocket Notes

9/13 - A Friday. Jonathan had been asking me if he could read Harry Potter for a while. I told him I needed to talk to Daddy about whether we thought he was ready, but I kept forgetting. The strategy that worked was asking me in Daddy's presence so I didn't have time to forget. ... (More)

Posted by joyful on October 19, 2013, 8:08 am
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah

Pocket Notes

Faith had a blast at Star Island with Grammy and Papa. 7/25 - JDD, explaining why he likes to use a certain spoon for his breakfast cereal, "That spoon is special to me, because Grammy gave it to me for Christmas last year." 7/28 or 29 - Joy had a cold and I gave her 1 or 2 nebulizer... (More)

Posted by joyful on September 14, 2013, 11:30 am
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah

Full Summer/Pocket Notes

Having a dad in the fire department is educational in more than just fire safety: 5/17 - Jon is called to an accident "involving motor vehicle vs. moose" 5/18 - Jonathan reads about moose and siberian tigers on wikipedia ~5 - Joy says "owee here" = outta here 5/20 - jpd 17 lb on our... (More)

Posted by joyful on July 28, 2013, 8:23 am
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah

This is what makes it all worth while

So last week I was worn out with the extra work that unexpected messes bring. Today I'm tired but happy about it. Yesterday, Jon left very early to go on the church men's retreat. Our morning at home started out pretty badly (bickering/fighting) and the boys had to go run around... (More)

Posted by joyful on June 8, 2013, 10:59 am
Category: General, Jonathan, Noah