Search Results: appointment

Third Dentist...
Warning: I'm feeling better now, but the following post pretty accurately how I felt for most of today. After a good appointment in Hillsboro, they still wanted us to go to a pediatric dentist who was familiar with chemo/transplant issues, so Heather headed up to Dartmouth this morning in the... (More)
Posted by jondaley on January 16, 2024, 11:51 pm
Category: Grace
Two Days of Appointments
For the most part, these last two days went pretty well.  Grace was a trooper as we navigated the multiple confusing buildings and talked with many providers and was poked and prodded by various specialists. Her audiology appointment went pretty well.  The doctor was impressed with... (More)
Posted by jondaley on January 12, 2024, 3:18 am
Category: Grace
Dinner in Boston
Had sushi after a day of appointments at the Dana Farber Cancer Institute.    We're staying overnight tonight. Had a lot of blood tests today and then a bunch of meetings with various providers to discuss next steps.   Audiology, dentist evaluations and an... (More)
Posted by jondaley on January 10, 2024, 6:20 pm
Category: Grace
Pre-transplant workups
We are heading to Boston tomorrow and Thursday for a myriad of appointments. Faith will also have her donor preparation appointments. I also discovered yesterday that a segment of our friends still had old dates. Because of our Christmas COVID, everything got postponed. So if all goes as... (More)
Posted by joyful on January 9, 2024, 10:07 pm
Category: Grace
Leukemia
The only known curative therapy for JMML is a bone marrow transplant, so we will be going down to the Boston Children's Hospital/Dana-Farber Cancer Institute . Their team is one of the leading cancer centers for treating JMML. We had our first visit on December 12, and are still processing... (More)
Posted by joyful on January 8, 2024, 2:38 pm
Category: Grace
Dartmouth Emergency Room
The pathology report indicated no parasites, and no bacterial infection, but confirmed the swollen lymph nodes. The doctor said, “I do not like the look of her paleness, and that spleen is really big. We need to see inside; go downstairs and get to imaging right away.” Grace had an... (More)
Posted by joyful on January 8, 2024, 2:37 pm
Category: Grace
Grace: Two Years of Unexplained Medical Issues
(this was written January 2024, referring to Grace's first two years of life) When Grace was about six weeks old, right at the beginning of December 2021 , I noticed that she had “ café au lait spots .” I looked it up on the internet, and discovered that these... (More)
Posted by joyful on January 8, 2024, 2:33 pm
Category: Grace
Pocket Notes
Faith had a blast at Star Island with Grammy and Papa. 7/25 - JDD, explaining why he likes to use a certain spoon for his breakfast cereal, "That spoon is special to me, because Grammy gave it to me for Christmas last year." 7/28 or 29 - Joy had a cold and I gave her 1 or 2 nebulizer... (More)
Posted by joyful on September 14, 2013, 11:30 am
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah
Full Summer/Pocket Notes
Having a dad in the fire department is educational in more than just fire safety: 5/17 - Jon is called to an accident "involving motor vehicle vs. moose" 5/18 - Jonathan reads about moose and siberian tigers on wikipedia ~5 - Joy says "owee here" = outta here 5/20 - jpd 17 lb on our... (More)
Posted by joyful on July 28, 2013, 8:23 am
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah
Notes Catchup Part II, the Whirlwind
Last catchup ended on the weekend of the fire company banquet.  That weekend was also the beginning of the new adventure.  Two different people called up to ask about looking to buy our house.  No, not the one we're fixing up to sell.  The one we're living in.  Well, ok,... (More)
Posted by joyful on April 1, 2012, 11:02 am
Category: General, Jonathan, Noah, Faith, Joy
Pocket Notes
Joy has two hair swirls at the back of her head.  One goes clockwise and one counter-clockwise.  Each of my other children only have one. 5/3 - Joy's two month appointment.  12 lb, 3 oz.  She is developing a birthmark in the upper right of her forehead (can't remember the... (More)
Posted by joyful on May 19, 2011, 6:57 pm
Category: General, Jonathan, Noah, Faith, Joy
Pocket Notes, 33 Week Appointment, Boys at the Dentist
12/23 - Noah: "Tomorrow's tomorrow is Christmas!" Both Jonathan and Noah were sick in the car on the way to New Hampshire.  Blessedly, they both managed to get everything in the bowls and nothing on anyplace else in the car.  By the time we arrived, they were fine and the rest of... (More)
Posted by joyful on January 19, 2011, 7:00 pm
Category: Jonathan, Pregnancy, Noah, Faith
Midwife Appointment, 29 Weeks
12/16 - Headed up in the snow for another midwife appointment.  I gained more weight this time, but Thanksgiving was in between visits...  My iron was low again, despite diligently eating that horrible molasses, but she was suspicious that her hemoglobin tester is off... (More)
Posted by joyful on December 22, 2010, 8:46 pm
Category: Pregnancy
A Full, Crazy, Fun Week
11/6 - Noah and I were making rice krispie treats and Noah was stirring.  He asked for a marshmallow, but I said no, they had to go in the recipe and he could have one of the finished products.  Well, he decided to snitch and got a natural lesson.  I, only a few feet away in the... (More)
Posted by joyful on November 15, 2010, 5:57 pm
Category: General, Jonathan, Pregnancy, Noah, Faith
19 weeks, Midwife Appointment
This morning, we drove up to the birth clinic where Jonathan and Noah were born.  Their midwife has retired (she wanted to before Noah was born, but actually did right before Faith was born) and her daughter has taken over the job.  We had met C before, when she was helping out her... (More)
Posted by joyful on October 7, 2010, 1:32 pm
Category: Pregnancy
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