Search Results: tomorrow

NG tube no fun
I walked home late Monday night, because there was supposed to be this big snowstorm. Jeremiah was already asleep, sprawled all over the bed. In the morning, it was only raining Jeremiah and I had leftover pizza for breakfast, and we walked to the hospital in the rain. The nurses and child... (More)
Posted by joyful on February 14, 2024, 7:45 am
Category: Grace
Better but hard
Day +4 Grace has not thrown up at all today! She even had an episode where she ate too much macaroni at once, and was able to spit it out without actually throwing up. She does have evidence of the mucositis in her intestines, and a little bit in her mouth, but that part is doing pretty... (More)
Posted by joyful on February 12, 2024, 6:08 pm
Category: Grace
Day 0 - Harvest
Faith's surgery is scheduled for 7:30 this morning.  We don't know how long it will take for the lab to process her marrow and then get it to Grace yet. Here are some pictures from yesterday. (More)
Posted by joyful on February 8, 2024, 4:25 am
Category: Grace
Some Freedom, Some Nausea
The last post left you with Jon and Grace down in ultrasound. That procedure took two hours. They took hundreds of pictures - exploring all her internal organs. She does have vessel constriction in her liver, wgich is not unexpected with JMML. So since then, she has gotten another prophylactic... (More)
Posted by joyful on February 3, 2024, 5:44 pm
Category: Grace
Third Dentist...
Warning: I'm feeling better now, but the following post pretty accurately how I felt for most of today. After a good appointment in Hillsboro, they still wanted us to go to a pediatric dentist who was familiar with chemo/transplant issues, so Heather headed up to Dartmouth this morning in the... (More)
Posted by jondaley on January 16, 2024, 11:51 pm
Category: Grace
Dinner in Boston
Had sushi after a day of appointments at the Dana Farber Cancer Institute.    We're staying overnight tonight. Had a lot of blood tests today and then a bunch of meetings with various providers to discuss next steps.   Audiology, dentist evaluations and an... (More)
Posted by jondaley on January 10, 2024, 6:20 pm
Category: Grace
Pre-transplant workups
We are heading to Boston tomorrow and Thursday for a myriad of appointments. Faith will also have her donor preparation appointments. I also discovered yesterday that a segment of our friends still had old dates. Because of our Christmas COVID, everything got postponed. So if all goes as... (More)
Posted by joyful on January 9, 2024, 10:07 pm
Category: Grace
Capital One Referral Code
I switched to Capital One after being with Citibank for years (decades, actually).  Citibank started a poor security practice of sending you a text message that says "never share this with anyone", and then they ask you to repeat that code over the phone (even after authenticating me with... (More)
Posted by jondaley on January 12, 2022, 11:30 am
Category: Reviews
Notes and Quotes
I am posting my backlog of pocket notes. Sometimes details are sparse. 6/29/16 - Noah's party, kids building brick fort, all the kids at the party working together. Yellow jackets end of June, Nathaniel stepping up stairs, holding rail or wall 7/7-7/10 - Balloon Festival, hosting... (More)
Posted by joyful on July 31, 2016, 11:42 am
Category: General, Noah, Joy, Jeremiah
September and October 2015 Pocket Notes
9/2 - NPD definitely pulling up (on bathtub) - see Mom's post of Maggie P. 9/2 - NPD, "ma-ma-ma" "na-na-na"  JDD is convinced it means "Mom" 9/2 - Joy, "2+3 is 5. [pause] I learned that in bed."  Subsequently also taughtherself other addition facts. 9/2 - Joy making bracelet... (More)
Posted by joyful on February 29, 2016, 8:22 am
Category: Jonathan, Noah, Joy, Jeremiah, Nathaniel
Marriage Retreat
Heather and I had the opportunity to attend a marriage retreat with 10 or so couples from our church this weekend, up at Rangeley Lake in Maine (thanks Scott, for the house!) We were the youngest couple (by far, the average marriage length represented there was 31 years), and we haven't... (More)
Posted by jondaley on October 7, 2013, 12:59 pm
Category: General
Strike Three, I'm Ready To Be Out
Thursday morning, we wake up to find mouse droppings and other evidence all over the kitchen.  Result: big kitchen scrubdown. Friday morning, Noah wakes up to find that the silly putty he fell asleep with is now melted into his pants, sheets, and blanket. Result: big fabric scrubdown.... (More)
Posted by joyful on June 1, 2013, 10:55 am
Category: General, Jonathan, Noah
Houston, We Have Mobility
Well, in the three weeks since I last posted, Joy has made major progress in mobility and the rest of the household is still working to adjust! 9/11 - Joy started crawling longer distances with a cross-pattern belly crawl. 9/13 - Every time we go into PIttsburgh, we cross the Allegheny... (More)
Posted by joyful on October 2, 2011, 11:58 am
Category: Jonathan, Noah, Faith, Joy
Pocket Notes, 33 Week Appointment, Boys at the Dentist
12/23 - Noah: "Tomorrow's tomorrow is Christmas!" Both Jonathan and Noah were sick in the car on the way to New Hampshire.  Blessedly, they both managed to get everything in the bowls and nothing on anyplace else in the car.  By the time we arrived, they were fine and the rest of... (More)
Posted by joyful on January 19, 2011, 7:00 pm
Category: Jonathan, Pregnancy, Noah, Faith
Pocket Notes and Potty Training
10/3 - Jon felt the baby kick!  Since then, Jonathan and Faith have thought maybe they felt it.  If the kids were ever up when I was still in bed but awake in the morning, they would definitely be able to feel it. 10/3 - Noah counted to 20 on his own.  He is most comfortable... (More)
Posted by joyful on October 23, 2010, 8:38 am
Category: Jonathan, Pregnancy, Noah, Faith
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