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Bad Behavior has blocked 445 access attempts in the last 7 days.

Jon wrote today: When I said it was a "bad day" the other day, a nurse corrected me and said "good moments and bad moments". This morning was good and she played in the playroom for quite a while. She did throw up after eating. But has continued to ask for food, and hasn't... (More)

Posted by joyful on February 18, 2024, 8:40 pm
Category: Grace

Day 0 - Harvest

Faith's surgery is scheduled for 7:30 this morning. We don't know how long it will take for the lab to process her marrow and then get it to Grace yet. Here are some pictures from yesterday. (More)

Posted by joyful on February 8, 2024, 4:25 am
Category: Grace

T-shirts are in!

The first round of tshirt orders has come in! Local people can come pick up anytime. Please bring payment when you come if you haven't prepaid. Noah will be mailing faraway people's shirts soon. I'll update later with how much has been raised for David's House. We... (More)

Posted by joyful on February 6, 2024, 2:58 pm
Category: Grace

Third Dentist...

Warning: I'm feeling better now, but the following post pretty accurately how I felt for most of today. After a good appointment in Hillsboro, they still wanted us to go to a pediatric dentist who was familiar with chemo/transplant issues, so Heather headed up to Dartmouth this morning in the... (More)

Posted by jondaley on January 16, 2024, 11:51 pm
Category: Grace

Two Days of Appointments

For the most part, these last two days went pretty well. Grace was a trooper as we navigated the multiple confusing buildings and talked with many providers and was poked and prodded by various specialists. Her audiology appointment went pretty well. The doctor was impressed with... (More)

Posted by jondaley on January 12, 2024, 3:18 am
Category: Grace

Heating

Since I'm on a roll of typing out the insulation we've used, I figured I might as well post about our heating systems too. We have five different heating sources for our home, and someday we'll get a sixth... 1a. Oil burner base board radiators. I grew up with base board radiators and I... (More)

Posted by jondaley on October 30, 2020, 10:46 am
Category: General, Reviews

Isaac Memorial Reflection

I typed up my memorial service reflection for a presentation we did at our church recently. I don't think it has been typed up before, so I thought I'd post it now. (Am I allowed to be amazed at myself?) Heather's memorial reflection, March 16, 2003 Isaac Christopher Daley - a... (More)

Posted by joyful on June 17, 2016, 2:58 pm
Category: Isaac

Nathaniel's First Enjoyable Snow

April 4, it snowed six inches. The next day, I wrote this: Today the snow is still there and the sun is out and the sky is bright blue. It feels like a gorgeous February day! But since it is April, Nathaniel is just that much more developed that he can enjoy this snow day to... (More)

Posted by joyful on April 17, 2016, 3:59 pm
Category: Nathaniel

Karate Tournament, Standish Maine

On Saturday, March 26th, Jonathan, Faith, Joy and I participated in our first karate tournament. The whole family rose bright and early so we could drive the two hours and 15 minutes to Standish, Maine. This tournament is relatively small, with only about five dojos participating.... (More)

Posted by joyful on March 31, 2016, 1:14 pm
Category: General, Jonathan, Faith, Joy

July and August 2015 Pocket Notes

7/6 - Noah is building a paperboard New England village. 7/6 - Jeremiah opened the cupboard under the kitchen sink with the TotLok. He was so proud of himself. "There we go. Open!" (sounds like "deh-do. Opih!") He closed it and opened it several times, each time repeating... (More)

Posted by joyful on February 29, 2016, 8:09 am
Category: Noah, Joy, Jeremiah, Nathaniel

Swiss Army Knife + Thumb = ER (April 4, 2015)

From an email written to my mom on April 4, 2015 at 7pm. Just after noon, Noah came screaming in from outside. He was holding one hand with the other and blood was dripping. I took him straight to the sink to wash off. He couldn't tell me what had happened and there was... (More)

Posted by joyful on January 8, 2016, 1:22 pm
Category: Noah

Nathaniel Is Born!

Once again, we were blessed to have Grandma and Dad-o with us for a birth. Jeremiah was still too clingy on Mommy for us to be comfortable having him at the birth. He did well completely away from me, but had trouble when nearby and I was unavailable. That is exactly the situation a... (More)

Posted by joyful on January 6, 2016, 1:36 pm
Category: Nathaniel

Every Day Is A Good Day

Yesterday was an exhausting day, so I made sure to get us ready for bed early. We were in bed by 9:00. But Jeremiah kicked his covers off just about every hour and asked me to put them back on again. By 3:30 or so, his medicine had worn off and he was wheezing and... (More)

Posted by joyful on April 23, 2015, 9:34 am
Category: General, Jeremiah

Pocket Notes

5/1 - Joy playing with even/odd dot cards. Didn't quite get the concept but sometimes was lucky, so I praised the correct answers. Then 6/2 - much more consistently correct. 5/1 - Jeremiah, watching the kids in karate class, copying them - doing punches from the "en guarde"... (More)

Posted by joyful on June 9, 2014, 9:44 pm
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah

Pocket Notes

3/23 - I told Jeremiah the toaster was hot, and he held up his hand, palm facing, but not touching, and said, "hah". 3/25 - Jeremiah was whining about something, and Noah, to cheer him up, said, "Why cry, my pygmy fly?" It made me laugh anyway! 3/26 - JPD definitely says "hi" now,... (More)

Posted by joyful on April 27, 2014, 8:37 pm
Category: Jonathan, Noah, Faith, Joy, Jeremiah