Daley Ponderings | Search Results

Search Results: days

Archives

Miscellaneous

Bad Behavior has blocked 439 access attempts in the last 7 days.

My place beside you, My blood for yours, Till the Green Ember rises, Or the end of the world! One of our favorite series is The Green Ember, by S. D. Smith . Rabbits with swords, new stories with old soul, heroes and villains, joy and grief, hope and longing, with love and... (More)

Posted by joyful on February 8, 2024, 8:13 pm
Category: Grace

Day 0 - Waiting

Faith's surgery went well. Her vitals stayed stable the whole time and they are all happy with how it went. She said coming out of anesthesia was just like waking up in the morning only she couldn't lift her head at first. Jon went down to be with her and I stayed with Grace. Grace threw up... (More)

Posted by joyful on February 8, 2024, 2:24 pm
Category: Grace

Day -1

I woke up at 6AM because it turns out that is when the hospital does weekly generator checks which involves the power going out, which shuts off the ventilation fan briefly and triggers these color changing lights (that we didn't know about previously, see below), and so the nurses run around to... (More)

Posted by jondaley on February 7, 2024, 12:24 pm
Category: Grace

Catchup the last few days

The last long update ended February 3 in the evening. In the wee hours of February 4 (Sunday) she got a blood transfusion for her hemoglobin level, which was expected. (They’re killing off her bone marrow, so her own body is not making as much blood.) Sunday morning, she got a dressing... (More)

Posted by joyful on February 7, 2024, 7:51 am
Category: Grace

Some Freedom, Some Nausea

The last post left you with Jon and Grace down in ultrasound. That procedure took two hours. They took hundreds of pictures - exploring all her internal organs. She does have vessel constriction in her liver, wgich is not unexpected with JMML. So since then, she has gotten another prophylactic... (More)

Posted by joyful on February 3, 2024, 5:44 pm
Category: Grace

Days -8 and -7

T-minus seven days and counting. Transplant Day is Day 0 and they count all other days from that. Yesterday, I left off while Grace was still sleeping. She woke up slightly grumpy, but soon was fully awake and her normal self. Chemo every six hours, blood draws every half hour (!) plus... (More)

Posted by joyful on February 1, 2024, 2:21 pm
Category: Grace

Two Days of Appointments

For the most part, these last two days went pretty well. Grace was a trooper as we navigated the multiple confusing buildings and talked with many providers and was poked and prodded by various specialists. Her audiology appointment went pretty well. The doctor was impressed with... (More)

Posted by jondaley on January 12, 2024, 3:18 am
Category: Grace

Leukemia

The only known curative therapy for JMML is a bone marrow transplant, so we will be going down to the Boston Children's Hospital/Dana-Farber Cancer Institute . Their team is one of the leading cancer centers for treating JMML. We had our first visit on December 12, and are still processing... (More)

Posted by joyful on January 8, 2024, 2:38 pm
Category: Grace

Dartmouth Emergency Room

The pathology report indicated no parasites, and no bacterial infection, but confirmed the swollen lymph nodes. The doctor said, “I do not like the look of her paleness, and that spleen is really big. We need to see inside; go downstairs and get to imaging right away.” Grace had an... (More)

Posted by joyful on January 8, 2024, 2:37 pm
Category: Grace

Capital One Referral Code

I switched to Capital One after being with Citibank for years (decades, actually). Citibank started a poor security practice of sending you a text message that says "never share this with anyone", and then they ask you to repeat that code over the phone (even after authenticating me with... (More)

Posted by jondaley on January 12, 2022, 11:30 am
Category: Reviews

Isaac Memorial Reflection

I typed up my memorial service reflection for a presentation we did at our church recently. I don't think it has been typed up before, so I thought I'd post it now. (Am I allowed to be amazed at myself?) Heather's memorial reflection, March 16, 2003 Isaac Christopher Daley - a... (More)

Posted by joyful on June 17, 2016, 2:58 pm
Category: Isaac

March 2016 Pocket Notes

3/4 - "It's like somebody chewing on a guitar string lengthwise." Jonathan was commenting on a squeaky artichoke. 3/11 - Faith lost lower left 2nd incisor. (R one was a couple of days earlier) 3/12 - Nathaniel was interested in the potty and went a couple of times. I have not been... (More)

Posted by joyful on April 17, 2016, 4:08 pm
Category: Jonathan, Noah, Faith, Joy, Jeremiah, Nathaniel

Every Day Is A Good Day

Yesterday was an exhausting day, so I made sure to get us ready for bed early. We were in bed by 9:00. But Jeremiah kicked his covers off just about every hour and asked me to put them back on again. By 3:30 or so, his medicine had worn off and he was wheezing and... (More)

Posted by joyful on April 23, 2015, 9:34 am
Category: General, Jeremiah

Pocket Notes

3/23 - I told Jeremiah the toaster was hot, and he held up his hand, palm facing, but not touching, and said, "hah". 3/25 - Jeremiah was whining about something, and Noah, to cheer him up, said, "Why cry, my pygmy fly?" It made me laugh anyway! 3/26 - JPD definitely says "hi" now,... (More)

Posted by joyful on April 27, 2014, 8:37 pm
Category: Jonathan, Noah, Faith, Joy, Jeremiah

Daley Vacation Washington DC

Got a bunch of spam comments and then when I was looking at posts, the boys pointed out that my last post was a month ago and I said "trip to DC goes in a separate post"... So here we go. When we went into downtown to see the sights, we split up into smaller groups. Jonathan,... (More)

Posted by joyful on April 23, 2014, 7:03 am
Category: General, Jonathan, Noah, Faith, Joy, Jeremiah