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Had sushi after a day of appointments at the Dana Farber Cancer Institute. We're staying overnight tonight. Had a lot of blood tests today and then a bunch of meetings with various providers to discuss next steps. Audiology, dentist evaluations and an... (More)

Posted by jondaley on January 10, 2024, 6:20 pm
Category: Grace

Next Steps: Boston Children's Hospital / Dana Farber Cancer Institute

Due to getting COVID, Grace's transplant date has been re-scheduled and we are currently scheduled to start the prepatory chemo (much stronger than the previous chemo she has received) on January 30th and then the bone marrow transplant a week later. We expect to be in the hospital for at... (More)

Posted by joyful on January 8, 2024, 2:51 pm
Category: Grace

Leukemia

The only known curative therapy for JMML is a bone marrow transplant, so we will be going down to the Boston Children's Hospital/Dana-Farber Cancer Institute . Their team is one of the leading cancer centers for treating JMML. We had our first visit on December 12, and are still processing... (More)

Posted by joyful on January 8, 2024, 2:38 pm
Category: Grace

Capital One Referral Code

I switched to Capital One after being with Citibank for years (decades, actually). Citibank started a poor security practice of sending you a text message that says "never share this with anyone", and then they ask you to repeat that code over the phone (even after authenticating me with... (More)

Posted by jondaley on January 12, 2022, 11:30 am
Category: Reviews

Heating

Since I'm on a roll of typing out the insulation we've used, I figured I might as well post about our heating systems too. We have five different heating sources for our home, and someday we'll get a sixth... 1a. Oil burner base board radiators. I grew up with base board radiators and I... (More)

Posted by jondaley on October 30, 2020, 10:46 am
Category: General, Reviews

Pocket Notes

I am posting my backlog of pocket notes. Sometimes details are sparse. 2/1 - Jonathan, "Even Einstein didn't have a triple-digit IQ." Noah, "Isn't that the guy with screws in his ears?" Jonathan, "No, that's Frankenstein." Noah is losing teeth all the time, I have trouble keeping track... (More)

Posted by joyful on March 31, 2017, 12:00 am
Category: Jonathan, Noah, Faith, Joy, Jeremiah, Nathaniel

Isaac Memorial Reflection

I typed up my memorial service reflection for a presentation we did at our church recently. I don't think it has been typed up before, so I thought I'd post it now. (Am I allowed to be amazed at myself?) Heather's memorial reflection, March 16, 2003 Isaac Christopher Daley - a... (More)

Posted by joyful on June 17, 2016, 2:58 pm
Category: Isaac

To Mom

Happy Mother's Day! I love you. Here is something I played in church this morning and thought of you. How Can I Keep From Singing? Love, Heather (More)

Posted by joyful on May 8, 2016, 12:24 pm
Category: General

March 2016 Pocket Notes

3/4 - "It's like somebody chewing on a guitar string lengthwise." Jonathan was commenting on a squeaky artichoke. 3/11 - Faith lost lower left 2nd incisor. (R one was a couple of days earlier) 3/12 - Nathaniel was interested in the potty and went a couple of times. I have not been... (More)

Posted by joyful on April 17, 2016, 4:08 pm
Category: Jonathan, Noah, Faith, Joy, Jeremiah, Nathaniel

Karate Tournament, Standish Maine

On Saturday, March 26th, Jonathan, Faith, Joy and I participated in our first karate tournament. The whole family rose bright and early so we could drive the two hours and 15 minutes to Standish, Maine. This tournament is relatively small, with only about five dojos participating.... (More)

Posted by joyful on March 31, 2016, 1:14 pm
Category: General, Jonathan, Faith, Joy

A Compassionate Heart

On the evening of March 4th, we were on our way to the church to get our portraits taken for the upcoming new photo directory. It was a bit chilly outside, but I didn't put my hood on because I didn't want to have to fix my hair when we got there. Jeremiah had just woken up from a nap so I... (More)

Posted by joyful on March 31, 2016, 1:05 pm
Category: Jeremiah

Swiss Army Knife + Thumb = ER (April 4, 2015)

From an email written to my mom on April 4, 2015 at 7pm. Just after noon, Noah came screaming in from outside. He was holding one hand with the other and blood was dripping. I took him straight to the sink to wash off. He couldn't tell me what had happened and there was... (More)

Posted by joyful on January 8, 2016, 1:22 pm
Category: Noah

January and February 2015 Pocket Notes

1/25 - Joy, about ready to dance, "Mommy, if you don't see this show, you won't see it again, EVER!" A good reminder to be present in the moment! I turned away from the computer and gave her my attention and I watched her beautiful solo dance show. 1/29 - Reading with Noah... (More)

Posted by joyful on January 6, 2016, 9:32 am
Category: Noah, Joy, Jeremiah

Sailing

We went sailing today in the Black Rabbit, which is the name of our Flying Junior. I do need to find out the history of it, because I think I don't have it quite correct. But Heather's grandpa have it to her when she was a kid and we've sailed it since we were married. It needed a... (More)

Posted by jondaley on August 5, 2015, 8:58 pm
Category: General

Every Day Is A Good Day

Yesterday was an exhausting day, so I made sure to get us ready for bed early. We were in bed by 9:00. But Jeremiah kicked his covers off just about every hour and asked me to put them back on again. By 3:30 or so, his medicine had worn off and he was wheezing and... (More)

Posted by joyful on April 23, 2015, 9:34 am
Category: General, Jeremiah