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Powered by LifeTypeWe are continually amazed at how God has prepared us for this time. Sometimes we just sit back and laugh, at how God has taught us various scripture over the last couple of months, and while they had some meaning then, were really meant for now. And how He gave them to various people to share with us, thinking they were sharing some new, great revelation they had had while praying for us, and really (while it was a great revelation) it was reminding us of how God has previously taught us something, and how we needed to stick by Him and have faith that He will bring us through.
"For I know the plans I have for you," declares the Lord. "Plans to prosper you, and not to harm you, plans to give you a hope and a future" -- Jeremiah 29:11
"May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit." -- Romans 15:13
"Do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own." -- Matthew 6:34
"They [Your mercies] are new every morning. Great is Your faithfulness" -- Lamentations 3:23
I think there are a couple more, but I cannot think of them now.
I think the hardest day was Friday, and even though Isaac died yesterday, and we have various ups and downs throughout this day and days to come, I think we have come to be more at peace about everything.
If you are wondering -- yes, we would like visitors. Call first to check if some particular time is alright, generally we have said people should not come in the early afternoon, so Heather can get rest. 412-683-2201.
Prayer requests:
That the coroner's investigation about whether there was any cases of neglect would be over quickly.
That Heather would recover quickly, and with as little pain as possible.
That Judy, our midwife, would not turn away from God in confusion, but rather let herself be tightly embraced by Him.
May the God of hope fill you with all joy and peace
as you trust in him, so that you may overflow with
hope by the power of the Holy Spirit.
Romans 15:13
Not much changed last night, although Isaac's heartbeat did return to a normal pace. The doctors have said that in general, all other organs besides the brain can recover reasonably well from a period of lack of oxygen, and that seems to be true for Isaac.
Had a sort of hard conversation with the neurologist and organ donation person today. I guess I just switch into a "medical mode" when I am talking with them, which makes it easier to think and cope with the information I receive.
The doctors have said that basically Isaac has been dead since Thursday, although the jerking movements he makes regularly, which are based just on nerves, and not brain activity, are all that keep him from being clinically brain dead.
We asked to have him taken off the ventilator early this afternoon. Prior to that, we requested that they remove the EEG wires from his head, and remove the various monitors and IV lines.
He was also weighed and measured, since that hadn't been done before. He weighed in at 9 pounds, 13 ounces. (Heather sometimes affectionately refers to him as "The Chunk")
The three of us (mom, Heather and I) were able to wash him, which was quite nice, although it wasn't a whole lot of fun to have to pull the glue (from the EEG wires) and various other sticky things left over from birth off of him.
The doctor said that after they turned off the air, and we had gone into a small, private room, that he would have to come in every half hour and check his heart rate. I tried to get them to not do that, and told them that I was able to check his heartbeat, but they didn't believe me. So, the doctor did come in once, and after taking forever to calculate the heartrate, started explaining it was low (I was listening periodically, so I knew it was slowing down), and I encouraged him to not bother explaining and leave, but he didn't seem to hear. Eventually, the nurse dragged him out and closed the door. Yay for Cathy (that was one of Isaac's nurses).
Isaac did cry once while we were in the private room. It was really great to hear him cry, as he hadn't cried prior to that at all. He died after about an hour (3:32PM).
John and Alissa Kuhns had been reading in scripture, the various times where people, particularly children had been raised from the dead, and so had asked us last night if John could come in to pray for Isaac after he died. We figured that we would be faithful in following God's word, and believing in Him, that He can work miracles if He so chooses, so we accepted John's offer. As John was praying, I looked at Heather and saw her the most beautiful I have ever seen her. She was thinking of the second verse of "I Offer My Isaac" and raising her arms as high as she could, saying, "My hands are free to praise You now."
However, God, in His sovereignty, chose to not raise Him from the dead. Nevertheless, I pray that God would be glorified in and through Isaac's life with us.
Prayer requests:
That all the official stuff that needs to be done, autopsy (required -- tried to get out of it, but I am told it is the law), funeral home, paperwork, etc. would not be a hard process, but would go quickly
That we and the rest of our family, would be able to grieve, but also through God's mercy, rejoice always, giving thanks in all circumstances, for this is God's will for us in Christ Jesus.
In His time, in His time,
He makes all things beautful in His time.
Lord, please show me every day,
As You're teaching me Your way,
That You do just what You say, in Your time.
In Your time, in Your time,
You make all things beautiful in Your time.
Lord, my life to You I bring.
May each song I have to sing
Be to You a lovely thing, in Your time.
When I arrived at the hospital, they told me that what they said the night before was not true. (of course they didn't admit that, rather just a "clarification" of what they had said) When they said he had low brain activity and possibly the phenobarbitol was attentuating the activity, what they meant was, he had no brain activity and the small of amount of phenobarbitol wouldn't really have affected it all that much.
It was somewhat devastating. Ok, not somewhat. A couple people called this morning and asked if they should come in, and I had told them it was ok, they could stay were they were for a while. So, I ended up by myself at the hospital. I didn't really know what to do, so I went outside for a walk. I wanted to tell Heather, but not over the phone. (Heather was still home due to the expected soreness, etc) I walked to Bellefield Presbyterian, where I had attended for a bit while in college. I got to talk to B.J. Woodworth, and he was able to make some phone calls for me (because I was basically unable to form complete sentences). I called home and unfortunately scared them into thinking that he had died, because I said it was bad, but wasn't really able to get the rest out. BJ drove me home, and I was able to be with Heather and tell her about stuff for a while. Then he drove me back to the hospital.
Mike Pierson, my pastor, was there, and Rob Moore, who hadn't heard the latest news, was also there, and they stayed until I left the hospital late tonight.
Heather was able(!) to make it to the hospital today, we had expected that she wouldn't be able to get there until tomorrow. It was really good for her to hold and cuddle Isaac.
Mom arrived early this evening, and we are so glad that she was able to make it as well. It really meant a lot to her to be able to hold him, and give him the afghan she knitted for him.
Mom spent the night at the hospital, probably held Isaac most of the time. I went home to be with Heather.
Prayer requests:
That we would have God's strength to uphold us for an impending decision about what to do about keeping him on life support
In Christ alone my hope is found,
He is my light, my strength, my song;
this Cornerstone, this solid Ground,
firm through the fiercest drought and storm.
What heights of love, what depths of peace,
when fears are stilled, when strivings cease!
My Comforter, my All in All,
here in the love of Christ I stand.
In Christ alone! who took on flesh
Fulness of God in helpless babe!
This gift of love and righteousness
Scorned by the ones he came to save:
Till on that cross as Jesus died,
The wrath of God was satisfied -
For every sin on Him was laid;
Here in the death of Christ I live.
There in the ground His body lay
Light of the world by darkness slain:
Then bursting forth in glorious Day
Up from the grave he rose again!
And as He stands in victory
Sin's curse has lost its grip on me,
For I am His and He is mine -
Bought with the precious blood of Christ.
No guilt in life, no fear in death,
This is the power of Christ in me;
From life's first cry to final breath.
Jesus commands my destiny.
No power of hell, no scheme of man,
Can ever pluck me from His hand;
Till He returns or calls me home,
Here in the power of Christ I'll stand.
Praise the Lord, O my soul, and all my deepest parts
Give praise to the One Who pulled You out of darkness
chorus of Tender Mercy, by Ben and Robin Pasley
But seek first the kingdom of God, and his righteousness;
and all these things shall be added unto you.
Do not worry about tomorrow, for tomorrow will worry about itself.
Each day has enough trouble of its own.
Matthew 6:33-34
Isaac remained stable throughout the night. They gave up trying to get an arterial catheter in, they said his blood is great, so maybe they don't need it after all (they spent probably 4 hours yesterday trying to get one in)
I will be on my way to the hospital shortly, Heather is still home, doing fine, sore, but got up by herself this morning.
My mom is flying into Pittsburgh this afternoon and will be at the hospital with us.
Heather recorded a video of herself singing, "Jesus Loves You, This I Know", so I can play it for Isaac when I get to the hospital.
Prayer requests:
That Isaac would move today. The doctor said yesterday that if he moves within the first 24 hours, things are looking really good.
That Heather and I can stayed focused on Him, and all the blessings that He has showered us with.
That the Lord would use me in my conversations with the other parents in the NICU. Some who are there are very scared and think they have little to hope for.
My hands are free to praise you wholly now
to receive what you have for me
Whether you take or return my Isaac oh Lord
On your altar my heart will still be
On your altar my heart will still be
Isaac was born 2:05PM, November 21st, 2002. No one has measured or weighed him, but we are guessing 8 pounds, and probably 21-22 inches in length.
He was not breathing when he was born, and after receiving oxygen for a minute, 911 was called, and he was rushed to Children's Hospital of Pittsburgh.
When we arrived, he was still not breathing, had a slow heart rate (100bpm), and was 10 degrees colder than normal.
He is in somewhat stable condition now, heart rate quickly picked up to relatively normal (140bpm), and has warmed up. However, now his heart rate is fast (210bpm), working really hard to get blood through his small/restricted blood vessels.
They had some trouble getting needles in for various fluids in and out, but they seem to be happy with the condition now.
They are concerned about some jerky movements he was making originally, and have run an EEG test (that is what lots of the wires on him in the picture are). Due to a sedative they gave him, his brain activity is low, so they are going to run the test again tomorrow for hopefully improved brain activity, with no signs of seizures.
Heather is fine, as much as could be expected after giving birth. She is tired, emotionally too. I have brought pictures and a short video (thank you Grandpa Wightman for the camera) home to show her, as she is not up to moving a whole lot yet.
I spent the whole day at the hospital, and the night with Heather at home. So many of you have cared for us so much. To those of you who have asked how can you help, please pray. I don't know what else to ask for. Alissa Kuhns is currently staying with Heather while I am gone, but she could probably use some help every once in a while.
I can do all things through Christ which strengthens me.
Philippians 4:11